CMT Simplified

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CMT Simplified

Hereditary Neuropathy Foundation

9 episodes

1 month ago

Send us a text Wading through the Social Security Disability Benefits process feels like navigating a bureaucratic labyrinth—one that becomes even more daunting when you're dealing with Charcot-Marie-Tooth disease. From chronic muscle weakness to mobility challenges, CMT sufferers face enough hurdles without fighting government red tape. This episode cuts through the confusion, offering a specialized roadmap for CMT patients seeking disability benefits. We break down the two distinct pathway...

Medicine

Health & Fitness

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Medicine

Health & Fitness

Episodes (9/9)

CMT Simplified

Applying for Disability with CMT

1 month ago

20 minutes

CMT Simplified

CMT Work Accommodations

Send us a text Have you ever wondered how to navigate the complex intersection of your Charcot-Marie-Tooth disease and your professional life? This essential episode delivers a powerful roadmap for workplace success, breaking down the often intimidating process of requesting accommodations into clear, actionable steps. We demystify the concept of "reasonable accommodation" under the Americans with Disabilities Act, explaining not just what it means legally, but how to translate this knowledg...

2 months ago

15 minutes

CMT Simplified

CMT: Newly Diagnosed, You're Not Alone

Send us a text Facing a Charcot-Marie-Tooth diagnosis can feel like being dropped into unknown territory with a flood of questions and uncertainty. Where do you even begin? What steps are truly essential? How do you move from feeling overwhelmed to taking meaningful action? This episode cuts through the noise to deliver a comprehensive roadmap for newly diagnosed individuals and their families. We break down the critical first steps recommended by the Hereditary Neuropathy Foundation, ...

3 months ago

13 minutes

CMT Simplified

Inside CMT Foot Surgery: Risks, Recovery, and Results

Have you ever wondered what's actually involved in correcting CMT-related foot deformities? This episode cuts through medical jargon to deliver a comprehensive guide to foot surgery for people with Charcot-Marie-Tooth disease, combining expert clinical knowledge with invaluable first-person experience. The classic high-arched, inward-turning foot seen in CMT isn't just a cosmetic issue—it creates real functional problems that impact daily living. Walking on the outside edge of your foot caus...

5 months ago

22 minutes

CMT Simplified

The ABCs of AFOs: A Guide for CMT Patients

AFOs might just be three letters—but for those living with CMT, they can mean the difference between daily struggle and confident mobility. In this episode, we explore how the right Ankle Foot Orthosis can reduce fatigue, improve stability, and even change the way you walk. From common gait compensations to what makes a good brace great, this conversation is packed with insights that could change your next step—literally. We also highlight two must-have tools, co-written by HNF and CMT orthot...

7 months ago

14 minutes

CMT Simplified

CMT-SORD: From Discovery to Clinical Trials

This episode explores the rapid advancements in understanding and treating CMT SORD, highlighting community engagement and innovative research, particularly focusing on the potential of the drug Gavorstat. The scientific journey from gene discovery to clinical trial showcases the power of collaboration, emphasizing patient voices in shaping treatment success. • Discussion on what CMT SORD is and its symptoms • Overview of the SORD gene’s role in the disease • Insights into the dr...

8 months ago

11 minutes

CMT Simplified

GRIN Stats: The Many Symptoms of CMT

Discover the complexities of Charcot-Marie-Tooth disease (CMT) and transform your understanding of this multifaceted condition. Join us on CMT Simplified as we uncover insights from the Global Registry for Inherited Neuropathies (GRIN) about the physical symptoms like foot drop and balance issues, as well as the emotional and social challenges faced by those living with CMT. We'll explore the emotional hurdles such as depression and anxiety that many grapple with, along with the diverse mobil...

9 months ago

12 minutes

CMT Simplified

Managing Pain in CMT: Strategies and Solutions

This episode dives into HNF's ABCs of CMT Pain Management Guide sharing effective strategies for managing pain associated with Charcot-Marie-Tooth disease (CMT). By exploring topics from dietary changes to the latest research in pain relief, we empower listeners with resources and insights to improve their quality of life. • Understanding neuropathic and musculoskeletal pain • The role of diet in pain management • Anti-inflammatory foods and dietary choices • Exercise as a key component for p...

10 months ago

16 minutes

CMT Simplified

Wearables and CMT: Data That Makes a Difference

Patients are driving the future of Charcot-Marie-Tooth (CMT) research, and you can be part of the change! In this episode of CMT Simplified, we dive into how wearable technology, like BioSensics devices, is empowering patients to participate in clinical trials from the comfort of their homes. Learn how your everyday experiences can provide researchers with the critical data needed to develop better treatments and improve the quality of life for the entire CMT community. Your voice and partic...

11 months ago

11 minutes