Champions for HD Podcast

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Champions for HD Podcast

Shelby Lentz

31 episodes

3 months ago

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through so...

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Health & Fitness

All content for Champions for HD Podcast is the property of Shelby Lentz and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through so...

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Health & Fitness

Episodes (20/31)

Champions for HD Podcast

A Raw Conversation About Living Gene Positive - with Charlotte Conn

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through so...

1 year ago

1 hour 48 minutes

Champions for HD Podcast

Testing, Finding Support, and Mental Health with HD - With Jenna Woodard

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information...

1 year ago

1 hour 8 minutes

Champions for HD Podcast

The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at (wikman.p@northeastern.edu) Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F... Apple Podcast Link: https://podcas...

2 years ago

1 hour 29 minutes

Champions for HD Podcast

Losing a Spouse With Huntingon's Disease with Amy Abbott

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiv...

2 years ago

1 hour 20 minutes

Champions for HD Podcast

"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show. I hope you enjoy our conversation! Follow Champio...

3 years ago

1 hour 10 minutes

Champions for HD Podcast

Living Gene Positive in a Relationship - with Sarah and Brandon

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD. I hope you enjoy our conversation! Follow Champions: https://www.championsfo...

3 years ago

1 hour 26 minutes

Champions for HD Podcast

Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Hu...

3 years ago

2 hours 26 minutes

Champions for HD Podcast

Living Life Gene Positive with Samantha Peterson

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD! Order Brave Breanna: https://www.amazon.com/B...

3 years ago

1 hour 45 minutes

Champions for HD Podcast

A Year Review of 2021: Over $30,000 Raised! 20 Families Served. Thank you!

Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.html Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Tell Us Your Story: https://www.championsforhd.org/tell-us-your-story Social Media Ambassador App: https://w...

3 years ago

42 minutes

Champions for HD Podcast

The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghty

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD! Order Brave Breanna: https://www.amazon....

4 years ago

1 hour 50 minutes

Champions for HD Podcast

An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Link

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community. Order Brave Breanna: https://www.amazon.com/Brave-Breanna...

4 years ago

1 hour 2 minutes

Champions for HD Podcast

I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease

Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show

4 years ago

22 minutes

Champions for HD Podcast

The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rawlins

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk. Listen to Kya's episode to learn more about how she is a Champion for HD! Follow Kya: https://www.instagram.com/kya90/ Follow Champions: https://www.ch...

4 years ago

1 hour 36 minutes

Champions for HD Podcast

There is Still Life Left to Live with Juvenile Huntington's Disease - Londen and Autumn Tabor

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Hu...

4 years ago

2 hours 10 minutes

Champions for HD Podcast

A Conversation with @ImNotDrunkLifeStyleBlog

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champions for HD Ambassador, and our current 2020 Champion for HD. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who...

4 years ago

1 hour 28 minutes

Champions for HD Podcast

Are there any benefits to testing for Huntington's Disease?

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it gave me the idea to come on here and talk about what benefits I have found about testing myself. This is personal, please do make sure to seek help...

4 years ago

32 minutes

Champions for HD Podcast

Having Hope and Faith with Huntington's Disease with Evonne Corrales

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in Indiana. She is also a Champions for HD 2021 Social Media Ambassador. A year ago, when she moved to Albany, she began to nice the first symptoms of HD....

4 years ago

1 hour 19 minutes

Champions for HD Podcast

Being a Caregiver for Juvenile Huntington's Disease with Marie

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I am feeling much better now, just fighting off severe fatigue, but I hear that can last a while. Today’s guest really hit me in my emotions. Marie...

4 years ago

1 hour 10 minutes

Champions for HD Podcast

Megan's in vitro fertilization ...SUCCESS!!! She's having a ?!

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylen...

4 years ago

33 minutes

Champions for HD Podcast

Reflecting on Her Father's Journey with HD - Loren Holifield

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, she continues to hold on to her favorite memories of him while also creating new ones. Her story will definitely make your heart warm. Follow Loren...

4 years ago

52 minutes