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4th Virtual Sjogren's Summit 2025
Kara Wada, MD
25 episodes
6 days ago
The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.
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Alternative Health
Health & Fitness
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All content for 4th Virtual Sjogren's Summit 2025 is the property of Kara Wada, MD and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.
Show more...
Alternative Health
Health & Fitness
Episodes (20/25)
4th Virtual Sjogren's Summit 2025
Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

What if you could achieve the results of 3-5 years of traditional allergy shots in just three visits over two months? For Sjogren's patients stuck in a cycle of inflammation, where allergies fuel autoimmune flares, this isn't just a question of convenience—it's a paradigm shift.


In this exclusive presentation, Dr. Kara Wada unveils the Accelerated Immune Reset-ILIT™ (AIR-ILIT) program for the first time publicly. She pulls back the curtain on this revolutionary approach, explaining the science of using ultrasound-guided intralymphatic immunotherapy to reprogram the immune system with unprecedented precision. Dr. Wada details the science, the patient experience, the expected results, and the investment required for this cutting-edge, concierge-level treatment.


Watch now to discover the future of allergy treatment for autoimmune patients and learn how you can explore if this breakthrough program is the right fit to help you rebel against chronic inflammation and rise to a new state of health.


AIR-ILIT™ Screening Form → https://links.drkarawada.com/widget/survey/igTqA2XSnbGbBkWbKXf8


SESSION IN A GLANCE

00:00 Intro

06:01 What is AIR-ILIT™? The Future of Allergy Treatment

09:22 The Science Deep Dive: How ILIT Reprograms Your Immune System

12:44 The Patient Experience: A 5-Step Concierge Journey

15:29 Real-World Results & Transformational Stories

20:30 The Investment: A Transparent Look at the Program Cost

23:58 Who is a Candidate for AIR-ILIT™?

26:52 An Exclusive Opportunity & Giveaway for Summit Attendees


ABOUT DR. KARA WADA


Dr. Kara Wada is a 4x board certified pediatric and adult allergy immunology, functional, and lifestyle medicine physician. She is also a Midwest mom of 3 kids and an elder millennial who loves a bit of pop punk music and has a rebel energy that is looking for ways to come out to play along with her very kind, loving, and compassionate nature. She uses a 4 R framework in her work: Recognize, Reclaim, Rebel, and Rise, which echoes throughout her work. She opened a direct care practice, The Immune Confident Institute, which allows her to practice medicine on her terms and is passionate about making this ideal type of care accessible to all.


CONNECT WITH DR. KARA WADA


Website → https://www.drkarawada.com/

LinkedIn → https://www.linkedin.com/in/karawadamd/

Instagram → https://www.instagram.com/immuneconfidentmd/

Facebook → https://www.facebook.com/KaraWadaMD

Twitter → https://twitter.com/CrunchyAllergy

TikTok → https://www.tiktok.com/@immuneconfidentmd


ABOUT THE VIRTUAL SJOGREN'S SUMMIT


The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
33 minutes 40 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

What is it really like to be in a clinical trial for a new Sjogren's medication? What are the tests like? What's the time commitment? And is it worth it?In this unique and candid roundtable discussion, Dr. Kara Wada is joined by fellow community member and Sjogren's patient Janet Steins to share their personal, lived experiences as participants in the same clinical trial. They pull back the curtain on the entire process—from the initial decision and the intensive screening process to the day-to-day realities of infusions, side effects, and daily surveys.Watch this session to get a rare, firsthand look into the world of clinical trials, hear honest advice for anyone considering this path, and discover the profound hope that comes from contributing to the future of Sjogren's treatment.SESSION IN A GLANCE00:00 Intro00:42 Janet's Background and Diagnosis01:36 Getting into the Clinical Trial03:02 Experiences and Challenges in the Trial06:54 Screening and Enrollment Process11:51 Trial Medications and Phases18:38 Personal Impact and Reflections27:57 Family History and Medical Advances30:48 The Challenge of Diagnosing Seronegative Patients32:07 Personal Experiences with Sjogren's Syndrome34:45 Considering Clinical Trials: Advice and Insights36:32 Navigating Clinical Trials: Expectations and Realities44:40 The Importance of Networks in Managing Chronic Conditions49:46 Concluding Thoughts and EncouragementABOUT JANET STEINSJanet Steins is a Sjogren's patient from Northwest Missouri who was diagnosed in 2021. After finding a supportive rheumatologist who recommended she join a clinical trial, Janet embarked on a journey to not only improve her own health but to contribute to a better future for all Sjogren's patients. A passionate advocate and valued member of our community, this entire session was inspired by her wonderful idea to share the real, lived experience of being in a clinical trial.ABOUT DR. KARA WADADr. Kara Wada is a 4x board certified pediatric and adult allergy immunology, functional, and lifestyle medicine physician. She is also a Midwest mom of 3 kids and an elder millennial who loves a bit of pop punk music and has a rebel energy that is looking for ways to come out to play along with her very kind, loving, and compassionate nature. She uses a 4 R framework in her work: Recognize, Reclaim, Rebel, and Rise, which echoes throughout her work.CONNECT WITH DR. KARA WADAWebsite → https://www.drkarawada.com/LinkedIn → https://www.linkedin.com/in/karawadamd/Instagram → https://www.instagram.com/immuneconfidentmd/Facebook → https://www.facebook.com/KaraWadaMDTwitter → https://twitter.com/CrunchyAllergyTikTok → https://www.tiktok.com/@immuneconfidentmdABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
54 minutes 14 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspiring fireside chat, Dr. Kara Wada sits down with internationally recognized patient advocate and entrepreneur, Lilly Stairs. Lilly shares her personal story of being diagnosed with three autoimmune diseases at age 19 and the "identity quake" that followed. She discusses how she redefined ambition, the crucial difference between support from family and support from peers, and the power of setting boundaries to say "yes" to yourself and your dreams.Tune in to this powerful conversation to learn how to navigate your career with chronic illness, find a community that truly "gets it," and hear the simple, reassuring message you might need to hear most: you're still going to live a beautiful, vibrant life.SESSION IN A GLANCE00:00 Introduction02:44 The 'Identity Quake' of a Diagnosis at 1906:43 Redefining Ambition with a Chronic Condition09:19 Finding Your People: The Importance of Peer Support14:00 The Power of Boundaries in Your Work and Life16:30 How to Advocate for Accommodations in the Workplace20:29 The One Thing I Wish Someone Had Told Me23:03 Where to Find and Connect with LillyABOUT LILLY STAIRSLilly Stairs is an internationally recognized patient advocate, serial entrepreneur, and sought-after speaker. Diagnosed with multiple autoimmune diseases, she is the Founder of the Chronic Boss Collective, a networking membership for ambitious business women with chronic conditions, and Patient Authentic, a consultancy that helps healthcare organizations build meaningful experiences for patient advocates. Lilly serves as the Board Chair of the Autoimmune Association, dedicating her life to empowering the autoimmune community.CONNECT WITH LILLY STAIRSWebsite → https://www.chronicbosscollective.com/LinkedIn → https://www.linkedin.com/in/lilly-stairs/Instagram → https://www.instagram.com/lillystairs/?hl=enInstagram → https://www.instagram.com/chronicbosscoABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
25 minutes 49 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Caregivers often struggle to remain empathetic and compassionate without becoming depleted and overwhelmed, leading to guilt, resentment, and burnout. But it doesn't have to be this way.In this deeply compassionate and practical session, palliative care physician and caregiver educator Dr. Delia Chiaramonte offers a lifeline to those supporting a loved one with Sjogren's. She teaches you the single most important concept for reducing stress—understanding what is and is not yours to fix. You'll learn simple, powerful techniques to calm your nervous system, set healthy boundaries, and mindfully manage difficult emotions.Watch now to discover how to fill your own cup, find meaning in the journey, and care for your loved one without losing yourself in the process.SESSION IN A GLANCE00:00 The Universal Stress of Caregiving02:19 What Is (and Is Not) Yours to Fix04:37 The Skill of Centering Yourself06:51 How to Calm Your Nervous System10:13 Generating Healing Intentions12:47 Making Space for Two Truths at Once14:09 How to Feel Your Feelings Without Drowning16:07 The Dangers of Toxic Positivity18:37 Keeping Your Cup Full: An Actionable Exercise24:09 Finding Meaning in the Journey24:51 Your True Role: Walking Beside ThemABOUT DR. DELIA CHIARAMONTEDr. Delia Chiaramonte is a palliative care physician and medical educator whose mission is to improve the care of the ill and aging through education and support of clinicians and family caregivers. She is the founder of the Integrative Palliative Institute, host of The Integrative Palliative Podcast, and author of Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself. She teaches at Johns Hopkins University School of Medicine and offers a caregiver wellbeing program called "Healing the Heart of the Caregiver."CONNECT WITH DR. DELIA CHIARAMONTEWebsite → www.integrativepalliative.comLinkedIn → https://www.linkedin.com/in/deliachiaramonte/Presentation Slides → https://drive.google.com/file/d/1ZLDc2rpc9PcG8GIO_FWm8O3A1CrfPAkZ/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
26 minutes 32 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feeling powerless and too stunned to speak up. This session is designed to change that.Join Board Certified Patient Advocate, author, and fellow Sjogren's patient Kristina Kelly as she shares her top 10 communication "hacks" for tough talks with docs. Built from the actionable section of her book, "How to Be a Badass in a Broken Healthcare System," this presentation gives you the practical scripts, plug-and-play tactics, and mindset shifts you need to advocate for yourself clearly, calmly, and confidently.Watch now to learn how to respond when you're being dismissed, prepare for high-stakes appointments without blanking out, and walk away with a plan of action to find your voice and use it like a badass.SESSION IN A GLANC00:00 Introduction: Welcome to Hack Your Healthcare01:39 Hack 1: Trash Talk Gets You Nowhere03:19 Hack 2: Ask Clarifying Questions04:22 Hack 3: Don't Let Them Rush You07:05 Hack 4: Beware the 'But'07:52 Hack 5: Be Honest, Not a Storyteller10:12 Hack 6: Say What You Need (The Goal-Setting Statement)13:14 Hack 7: Think Bullseye, Not Buckshot15:10 Hack 8: Don't Be Afraid to Repeat Yourself16:20 Hack 9: Practice the Art of Listening17:34 Hack 10: Be Intentional, Not Impulsive19:00 Real Talk from a Fellow Patient: You're Not Failing, You're Learning19:50 Where to Find Support: Communities & Patient AdvocatesABOUT KRISTINA KELLY, BCPAKristina Kelly is a board certified patient advocate and the author of How to Be a Badass in a Broken Healthcare System. After battling undiagnosed autoimmune symptoms for years, she was formally diagnosed with seronegative Sjögren’s and now uses her professional background and lived experience to help other patients navigate the diagnostic maze with more confidence and less burnout. Through her business, Little Engine Patient Advocacy, she supports chronically ill patients by teaching practical advocacy skills and creating easy-to-use tools for communication.CONNECT WITH KRISTINA KELLYWebsite → https://littleenginepatientadvocacy.com/Instagram → https://www.instagram.com/littleenginepatientadvocacy/Facebook → https://www.facebook.com/profile.php?id=61570805397823TikTok → https://www.tiktok.com/@littleengineadvocacyPresentation Slides → https://drive.google.com/file/d/1ENx1cut_cOuKCavMOo6UazEWN1rWoUa8/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
23 minutes 24 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feeling powerless and too stunned to speak up. This session is designed to change that.Join Board Certified Patient Advocate, author, and fellow Sjogren's patient Kristina Kelly as she shares her top 10 communication "hacks" for tough talks with docs. Built from the actionable section of her book, "How to Be a Badass in a Broken Healthcare System," this presentation gives you the practical scripts, plug-and-play tactics, and mindset shifts you need to advocate for yourself clearly, calmly, and confidently.Watch now to learn how to respond when you're being dismissed, prepare for high-stakes appointments without blanking out, and walk away with a plan of action to find your voice and use it like a badass.SESSION IN A GLANC00:00 Introduction: Welcome to Hack Your Healthcare01:39 Hack 1: Trash Talk Gets You Nowhere03:19 Hack 2: Ask Clarifying Questions04:22 Hack 3: Don't Let Them Rush You07:05 Hack 4: Beware the 'But'07:52 Hack 5: Be Honest, Not a Storyteller10:12 Hack 6: Say What You Need (The Goal-Setting Statement)13:14 Hack 7: Think Bullseye, Not Buckshot15:10 Hack 8: Don't Be Afraid to Repeat Yourself16:20 Hack 9: Practice the Art of Listening17:34 Hack 10: Be Intentional, Not Impulsive19:00 Real Talk from a Fellow Patient: You're Not Failing, You're Learning19:50 Where to Find Support: Communities & Patient AdvocatesABOUT KRISTINA KELLY, BCPAKristina Kelly is a board certified patient advocate and the author of How to Be a Badass in a Broken Healthcare System. After battling undiagnosed autoimmune symptoms for years, she was formally diagnosed with seronegative Sjögren’s and now uses her professional background and lived experience to help other patients navigate the diagnostic maze with more confidence and less burnout. Through her business, Little Engine Patient Advocacy, she supports chronically ill patients by teaching practical advocacy skills and creating easy-to-use tools for communication.CONNECT WITH KRISTINA KELLYWebsite → https://littleenginepatientadvocacy.com/Instagram → https://www.instagram.com/littleenginepatientadvocacy/Facebook → https://www.facebook.com/profile.php?id=61570805397823TikTok → https://www.tiktok.com/@littleengineadvocacyPresentation Slides → https://drive.google.com/file/d/1ENx1cut_cOuKCavMOo6UazEWN1rWoUa8/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
23 minutes 23 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Autoimmune conditions and their symptoms are often exacerbated by trauma and stress. While we are often taught to internalize our emotions and stress, this can lead to self-criticism that only fuels the fire.In this compassionate and insightful session, Oral Medicine Clinician and Trauma-Informed Coach Dr. Jillian Rigert explores the critical link between stress, trauma, and immune system dysregulation. She explains the difference between stress and trauma, reveals how perfectionism and self-criticism can harm our health, and offers a powerful path forward through self-compassion.Watch now to learn how to shift your relationship with your mind, body, and self by cultivating a healing, trauma-informed, and compassionate internal environment.SESSION IN A GLANCE02:03 The Difference Between Stress, Toxic Stress, and Trauma06:41 Shifting to a Healing Mindset08:45 The Role of Perfectionism in Chronic Illness13:36 Reclaiming Your Narrative with Self-Compassion16:25 Tender vs. Fierce Self-Compassion18:37 Boundaries as an Act of Love21:35 The Importance of Your Environment and Community23:02 Your Next Small Step to Sustainable ChangeABOUT JILLIAN RIGERT, DMD, MD, ACC, TIPCDr. Jillian Rigert is an Oral Medicine Clinician-Researcher, an Air Force Veteran, and a Martha Beck-certified, Trauma-informed Professional Coach. As a clinician, she has expertise in supporting patients with the oral manifestations of systemic conditions. Her primary professional focus is examining how trauma impacts the mind, body, and relationships, and the powerful role of compassion in promoting healing. She is currently a Marriage and Family Therapy grad student with a focus in trauma.CONNECT WITH JILLIAN RIGERTWebsite → https://www.jillianrigertcoaching.com/YouTube → https://www.youtube.com/@DrJillianRigertLinkedIn → https://www.linkedin.com/in/jillian-rigert/Presentation Slides → https://drive.google.com/file/d/1hjCD7SgHWLglkQQHXQx3_RIPrjnod46Z/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
25 minutes 7 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

What if the patient you see as "difficult" is actually traumatized? For many living with Sjogren's, years of medical dismissal, normal lab results despite debilitating symptoms, and being told "it's all in your head" can create significant medical trauma.In this essential session, Child Trauma Response Specialist and Sjogren's patient Elise Colquitt bridges her two worlds to offer a masterclass in trauma-informed care. Drawing on her expertise in forensic interviewing and trauma therapy, she reveals how common patient behaviors—like bringing in binders of research or minimizing symptoms—are often protective defense mechanisms. She provides concrete, actionable strategies that providers can use to create emotional safety, build trust, and deliver a diagnosis with compassion.Whether you are a healthcare professional seeking to improve patient outcomes or a patient wanting to understand your own responses to the healthcare system, watch this session to learn how one validating experience can heal years of dismissal.SESSION IN A GLANCE02:35 What Medical Trauma Looks Like in Patients03:31 Defense Mechanisms vs. Difficult Behaviors08:52 The High Cost of Unrecognized Trauma09:57 Creating a Trauma-Informed Environment12:52 How Your Opening Question Sets the Tone16:19 Words That Matter: Trauma-Informed Language18:28 How to Manage Diagnosis Delivery with Care22:59 Building a Patient's Network in Real Time25:05 Your Trauma-Informed Toolkit: Knowledge into ActionABOUT ELISE COLQUITT, MSWElise Colquitt is a Child Trauma Response Specialist who provides Trauma-Focused Cognitive Behavioral Therapy (TF-CBT) and facilitates trauma-informed forensic interviews. Her professional expertise in trauma response, combined with her personal journey as a Sjogren's patient, informs her work through SPARK Advocacy Collective. Her unique perspective allows her to address the intersection of medical trauma and chronic illness, teaching evidence-based strategies to create emotionally safe environments and transform the provider-patient relationship into a collaborative partnership.CONNECT WITH ELISE COLQUITTWebsite → https://sparkadvocacycollective.com/LinkedIn → www.linkedin.com/in/elise-colquitt-700013180Presentation Slides → https://drive.google.com/file/d/1XS80wOWTtGXalVQP8PKzDpu9tR7ZxlNw/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
24 minutes 13 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Elise Colquitt, MSW - The Trauma-Informed Provider: Supporting Patients Through Early Diagnosis Navigation

What if the patient you see as "difficult" is actually traumatized? For many living with Sjogren's, years of medical dismissal, normal lab results despite debilitating symptoms, and being told "it's all in your head" can create significant medical trauma.In this essential session, Child Trauma Response Specialist and Sjogren's patient Elise Colquitt bridges her two worlds to offer a masterclass in trauma-informed care. Drawing on her expertise in forensic interviewing and trauma therapy, she reveals how common patient behaviors—like bringing in binders of research or minimizing symptoms—are often protective defense mechanisms. She provides concrete, actionable strategies that providers can use to create emotional safety, build trust, and deliver a diagnosis with compassion.Whether you are a healthcare professional seeking to improve patient outcomes or a patient wanting to understand your own responses to the healthcare system, watch this session to learn how one validating experience can heal years of dismissal.SESSION IN A GLANCE02:35 What Medical Trauma Looks Like in Patients03:31 Defense Mechanisms vs. Difficult Behaviors08:52 The High Cost of Unrecognized Trauma09:57 Creating a Trauma-Informed Environment12:52 How Your Opening Question Sets the Tone16:19 Words That Matter: Trauma-Informed Language18:28 How to Manage Diagnosis Delivery with Care22:59 Building a Patient's Network in Real Time25:05 Your Trauma-Informed Toolkit: Knowledge into ActionABOUT ELISE COLQUITT, MSWElise Colquitt is a Child Trauma Response Specialist who provides Trauma-Focused Cognitive Behavioral Therapy (TF-CBT) and facilitates trauma-informed forensic interviews. Her professional expertise in trauma response, combined with her personal journey as a Sjogren's patient, informs her work through SPARK Advocacy Collective. Her unique perspective allows her to address the intersection of medical trauma and chronic illness, teaching evidence-based strategies to create emotionally safe environments and transform the provider-patient relationship into a collaborative partnership.CONNECT WITH ELISE COLQUITTWebsite → https://sparkadvocacycollective.com/LinkedIn → www.linkedin.com/in/elise-colquitt-700013180Presentation Slides → https://drive.google.com/file/d/1XS80wOWTtGXalVQP8PKzDpu9tR7ZxlNw/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
27 minutes 21 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Panel - Navigating New Frontiers in Healthcare: Insurance, Care Models, & Physician Journeys

What if your doctor's visit wasn't limited to 15 minutes? What if your care team truly communicated with each other? What if your lived experience was valued as much as your lab results?In this powerhouse roundtable discussion, Dr. Kara Wada brings together three pioneering physicians who have all stepped outside the traditional insurance-based system to build something better. Join Dr. Bonnie Feldman, Dr. Brittany Panico, and Dr. Zach Spiritos for an honest conversation about the limitations of conventional medicine for complex chronic illnesses like Sjogren's. They discuss the challenges of time, reimbursement, and siloed specialties, and share their vision for a future of integrated, patient-centered care.Tune in to hear how these innovators are navigating new frontiers in healthcare.SESSION IN A GLANCE00:00 Introduction and Welcome01:14 Meet Dr. Bonnie Feldman03:03 Meet Dr. Brittany Panico04:46 Meet Dr. Zach Spiritos07:04 Challenges in Traditional Healthcare10:25 Innovative Approaches in Rheumatology15:45 Building a Multidisciplinary Care Team33:26 Payment and Reimbursement Challenges35:45 Exploring Direct Primary Care Models36:53 Challenges of Running a Cash-Based Practice37:53 The Reality of Insurance Reimbursement39:57 The Importance of Preventative Care42:06 Innovative Approaches in Autoimmune Care53:09 Final Thoughts and Future Directions53:32 The Role of Patient Advocacy55:25 Advice for Patients Feeling LostABOUT DR. BONNIE FELDMAN, DDS, MBADr. Bonnie Feldman is the founder of Your Autoimmunity Connection (DrBonnie360). Driven by personal and professional passion, she uses 21st Century technology to raise awareness about the invisible autoimmune epidemic and to build bridges across the abyss of slow diagnosis and disappointing treatment. Her multiple careers as a dentist, Wall Street equity analyst, and digital health consultant give her a unique multi-lens viewpoint.CONNECT WITH DR. BONNIE FELDMANLinkedIn → https://www.linkedin.com/in/bonniefeldman/ABOUT DR. BRITTANY PANICO, MDDr. Brittany Panico is a Board Certified Rheumatologist and founder of Summit Rheumatology. She specializes in treating rheumatologic diseases like Sjogren's, RA, and lupus, offering patients treatment options that fit their lifestyle goals.CONNECT WITH DR. BRITTANY PANICOWebsite → summitrheumatology.comABOUT DR. ZACHARY SPIRITOS, MD, MPHDr. Zachary Spiritos is a Duke-trained neurogastroenterologist and founder of EverBetter Medicine. He specializes in treating patients with complex, chronic conditions like POTS, MCAS, EDS, and gastrointestinal dysmotility. He is passionate about working with patients who have felt dismissed and takes a whole-person approach, integrating conventional medicine with interventions targeting sleep, stress, movement, and nutrition.CONNECT WITH DR. ZACHARY SPIRITOSWebsite → https://everbettermedicine.healthInstagram → https://www.instagram.com/drzacspiritos/?hl=enABOUT DR. KARA WADADr. Kara Wada is a 4x board certified pediatric and adult allergy immunology, functional, and lifestyle medicine physician. She is also a Midwest mom of 3 kids and an elder millennial who loves a bit of pop punk music and has a rebel energy that is looking for ways to come out to play along with her very kind, loving, and compassionate nature.CONNECT WITH DR. KARA WADAWebsite → https://www.drkarawada.com/LinkedIn → https://www.linkedin.com/in/karawadamd/Instagram → https://www.instagram.com/immuneconfidentmd/Facebook → https://www.facebook.com/KaraWadaMDTwitter → https://twitter.com/CrunchyAllergyTikTok → https://www.tiktok.com/@immuneconfidentmdABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
1 hour 3 minutes 10 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Nishi Bhopal, MD - Integrative Approaches to Sleep

If you're living with Sjogren's, you know that profound and debilitating fatigue is one of the most common complaints. But what if the key to better energy isn't just about managing your condition, but radically improving your sleep?In this comprehensive session, board-certified sleep medicine specialist Dr. Nishi Bhopal walks you through "Sleep 101." She explains why sleep is the foundation for good health, the common sleep issues seen in Sjogren's (like insomnia and sleep apnea), and introduces her "Three Pillars of Sleep" framework.Watch now to learn actionable, integrative strategies—from nutrition and supplements to behavioral therapies like CBT-i—that can help you calm your nervous system, optimize your body clock, and finally get the restorative sleep you need.SESSION IN A GLANCE00:00 Introduction to Integrative Sleep Medicine01:21 Sleep 101: Why Sleep is the Foundation of Health04:59 What Are Your Baseline Sleep Needs?08:24 Common Sleep Issues in Sjogren's10:43 The Three Pillars of Sleep: CSH Framework15:02 Conventional vs. Integrative Sleep Strategies17:34 How Food and Nutrition Impact Sleep Quality19:30 Herbs and Botanicals for Sleep Support20:31 Your Next Step: Where Do You Want to Start?ABOUT NISHI BHOPAL, MDDr. Nishi Bhopal is a Board Certified Physician specializing in Sleep Medicine, Psychiatry, and Integrative Medicine. She has a private practice called Pacific Integrative Psychiatry, where she helps adults with anxiety, depression, and sleep issues. She also founded IntraBalance, an educational platform and YouTube channel that makes clinical sleep medicine easy to understand and accessible to all.CONNECT WITH NISHI BHOPAL, MDLinkedIn → https://www.linkedin.com/in/nishibhopal/Instagram → https://www.instagram.com/intrabalanceYouTube → https://www.youtube.com/c/intrabalanceSleep Coaching Waitlist → https://members.intrabalance.com/insomnia-waitlistABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
22 minutes 51 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Cheryl Crow, OTR/L - The Acceptance Paradox: How I Stopped Fighting Chronic Illness & Started Thriving WITH it

When living with a chronic autoimmune condition, we are often told to "fight" it or "conquer" it to live a full life. But what if, instead, we learned to truly thrive with our conditions by riding the waves of uncertainty with more grace?In this transformative session, occupational therapist and rheumatoid arthritis patient Cheryl Crow introduces "The Acceptance Paradox." She explains how Acceptance and Commitment Therapy (ACT) helped her stop fighting the unsolvable parts of chronic illness and start thriving alongside them. You'll learn the difference between "acceptance" and "resignation," explore powerful metaphors like the "passengers on the bus," and discover how allowing for the present moment—even when it's uncomfortable—can free up your energy to live a more meaningful life.Tune in to change your relationship with the idea of acceptance and discover what's still possible in your life, even with Sjogren's.SESSION IN A GLANCE00:00 The Challenge of Acceptance03:11 The Hero's Journey vs. The Reality of Chronic Illness06:31 The "Fixing" vs. "Thriving" Methods08:09 The Truth Will Set You Free (But First...)11:20 The Acceptance Paradox: Feeling Better by Allowing Unhappiness13:42 Correcting Myths About Acceptance15:35 Metaphors for ACT: The Finger Trap & The Passengers on the Bus19:07 The Final Boss: Accepting Uncertainty21:57 Feeling Better vs. "Feeling" BetterABOUT CHERYL CROW, OTR/LCheryl Crow is a passionate advocate for addressing the full spectrum of needs for people with rheumatic diseases—far beyond just joint pain. Having lived with rheumatoid arthritis for over two decades, she became an occupational therapist and founded Arthritis Life to educate, empower, and support others navigating life with arthritis. Known for her engaging content, she is the host of the Arthritis Life Podcast and leads Rheum to THRIVE, an online self-management course and support group where she helps people build meaningful, fulfilling lives.CONNECT WITH CHERYL CROWYouTube → https://www.youtube.com/channel/UCDEZnSHMkC5FJ6enOwHsRKgInstagram → https://www.instagram.com/arthritis_life_cheryl/TikTok → https://www.tiktok.com/@arthritislifeSLIDES -> https://drive.google.com/file/d/1HLuxiwErS5NUQ2zA6NuK20idra0tIrM5/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
25 minutes 13 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Jacqueline Marks, MA, RYT-200 - Who Deserves Your Magic?: Cultivating Your Sense of Agency to Build a Network that Nourishes

This session offers an introduction to yoga therapy—what it is, how it differs from a typical yoga class, and why it can be especially supportive for individuals living with Sjögren’s Syndrome. Rooted in accessible, therapeutic practices, this approach blends gentle movement, breathwork, and mindfulness to address common symptoms like fatigue, joint pain, dryness, and emotional stress.


When you're living with an Energy-Limiting Chronic Illness (ELCI) like Sjogren's, who truly deserves your "magic"—your precious energy, presence, and focus? In this empowering session, wellness educator and Sjogren's patient Jacqueline Marks introduces the concept of personal agency as the key to answering that question. She reframes the challenge from one of time management to energy management, offering a powerful toolkit for setting boundaries, taking ownership of your well-being, and building a network that truly nourishes you.


Watch now to learn how cultivating your sense of agency can make you a stronger self-advocate, bolster your resilience, and help you thrive with authentic meaning and purpose.


SESSION IN A GLANCE

01:59 Sjogren's as an Energy Limiting Illness

03:42 Managing Energy Not Time

06:05 The Definition of Personal Agency

07:31 What You Can and Cannot Control

08:48 Nurturing Your Social Wellness

11:28 Practicing Discernment in Relationships

13:15 Using Radical Acceptance and Boundaries

15:29 7 Building Blocks to Restore Your Agency

18:18 Thriving with Meaning and Purpose


ABOUT JACQUELINE MARKS, MA, RYT-200


Jackie, the SjogiYogi®, has been inspiring and engaging students for more than 25 years. After being diagnosed with systemic Sjogren’s Disease, she pivoted from teaching mathematics to personal wellness. Her daily experience with this energy-limiting chronic illness makes her uniquely qualified to share how to best conserve, direct, and sustain personal energy resources. With warmth and humor, she designs empowering workshops that inspire participants to embody their authenticity as a tool to improve self-advocacy skills and enhance personal agency.


CONNECT WITH JACQUELINE MARKS


Website → https://sjogiyogi.com/

LinkedIn → www.linkedin.com/in/jacqueline-marks-96187334

SLIDES - https://drive.google.com/file/d/1L94pofpf8FzPBv1corA7szQ6E7FB9MGo/view?usp=drive_link


ABOUT THE VIRTUAL SJOGREN'S SUMMIT


The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
20 minutes 21 seconds

4th Virtual Sjogren's Summit 2025
Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspiring fireside chat, Dr. Kara Wada sits down with internationally recognized patient advocate and entrepreneur, Lilly Stairs. Lilly shares her personal story of being diagnosed with three autoimmune diseases at age 19 and the "identity quake" that followed. She discusses how she redefined ambition, the crucial difference between support from family and support from peers, and the power of setting boundaries to say "yes" to yourself and your dreams.Tune in to this powerful conversation to learn how to navigate your career with chronic illness, find a community that truly "gets it," and hear the simple, reassuring message you might need to hear most: you're still going to live a beautiful, vibrant life.SESSION IN A GLANCE00:00 Introduction02:44 The 'Identity Quake' of a Diagnosis at 1906:43 Redefining Ambition with a Chronic Condition09:19 Finding Your People: The Importance of Peer Support14:00 The Power of Boundaries in Your Work and Life16:30 How to Advocate for Accommodations in the Workplace20:29 The One Thing I Wish Someone Had Told Me23:03 Where to Find and Connect with LillyABOUT LILLY STAIRSLilly Stairs is an internationally recognized patient advocate, serial entrepreneur, and sought-after speaker. Diagnosed with multiple autoimmune diseases, she is the Founder of the Chronic Boss Collective, a networking membership for ambitious business women with chronic conditions, and Patient Authentic, a consultancy that helps healthcare organizations build meaningful experiences for patient advocates. Lilly serves as the Board Chair of the Autoimmune Association, dedicating her life to empowering the autoimmune community.CONNECT WITH LILLY STAIRSWebsite → https://www.chronicbosscollective.com/LinkedIn → https://www.linkedin.com/in/lilly-stairs/Instagram → https://www.instagram.com/lillystairs/?hl=enInstagram → https://www.instagram.com/chronicbosscoABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
25 minutes 49 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Dympna Weil - Tapping Into Your Healing Powers: Emotional Freedom Technique for Everyday Well-Being

What if you could carry a tool with you, anytime and anywhere, that could calm your nervous system, lower stress, and help you manage the overwhelm of chronic illness?In this experiential and evidence-based session, physician and Master Coach Dr. Dympna Weil introduces you to the Emotional Freedom Technique (EFT), also known as "tapping." She explains the simple yet powerful science of how combining gentle tapping on acupressure points with focused attention can interrupt the body's fight-or-flight response, lower cortisol levels, and create a sense of calm.Watch now to learn the foundational principles of EFT, discover how it can help with real-life challenges like anxiety before appointments and pain management, and participate in a guided tapping session to feel the effects in your own body in real time.SESSION IN A GLANCE00:00 Introduction to EFT for Everyday Wellbeing03:34 What is EFT (Tapping)?06:21 The Science Behind Tapping08:36 The History of EFT10:14 A Personal Story: Tapping as a Lifeline13:34 The 9 Tapping Points18:17 Guided Tapping Session for Health Overwhelm21:07 How to Apply EFT to Chronic Illness Challenges23:52 Your Action Plan to Start Tapping Today26:18 Trusted Resources to Continue Your PracticeABOUT DR. DYMPNA WEIL, MD, FACOGDr. Dympna Weil is a board-certified OB-GYN and a Martha Beck-certified Master Coach. After her own clinical career was paused by the onset of chronic medical conditions, she immersed herself in self-development and self-care, founding Prescribing Possibility™, a coaching and consulting practice. Through her work and her podcast of the same name, she helps physicians and other high-achieving professionals find tools for wellness and self-regulation.CONNECT WITH DR. DYMPNA WEILFacebook → https://www.facebook.com/dympna.weilInstagram → https://www.instagram.com/dympnaweil/LinkedIn → https://www.linkedin.com/in/dympnaweil/The Tapping Solution App (Recommended Resource) → https://www.thetappingsolution.com/blog/tapping-solution-app/SLIDES → https://drive.google.com/file/d/115w4XLikXk386BQkq886V3TP69SSMAWt/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
28 minutes 12 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Diane Hilal-Campo - Sjogrens Disease and Dry Eyes - How can I get back into Eye makeup?

For many with Sjogren's, severe dry eye can make wearing eye makeup feel impossible, leading to irritation, inflammation, and pain. But does it have to be this way?In this informative and practical session, board-certified ophthalmologist and dry eye specialist Dr. Diane Hilal-Campo breaks down the science behind Sjogren's-related dry eye disease. She explains the difference between aqueous deficient and evaporative dry eye, outlines the most effective medical treatments available, and reveals how common makeup ingredients can exacerbate your symptoms.Watch now to understand your dry eye treatment options and learn how, with the right products and hygiene, you can safely and comfortably get back into wearing the eye makeup you love.SESSION IN A GLANCE00:00 Introduction to Sjogren's and Dry Eye01:57 Two Major Types of Dry Eye Disease04:00 Modern Treatments for Aqueous Deficient Dry Eye08:31 How Eye Makeup Exacerbates Dry Eye Disease10:00 The Solution: How to Get Back into Eye Makeup11:58 Better Ingredients for Healthier Eyes14:30 Why Mascara and Eyeshadow Matter16:35 Final Thoughts and EncouragementABOUT DR. DIANE HILAL-CAMPODr. Diane Hilal-Campo is a Columbia-trained, board-certified ophthalmologist in private practice where she has been treating eye diseases for over 25 years. After spending decades treating patients struggling with dry eye and other painful conditions caused by makeup, she developed her own brand of ophthalmologist-formulated, eye-friendly formulas, twenty/twenty beauty. Dr. Hilal-Campo created twenty/twenty beauty to help promote and preserve the long-term eye health of makeup wearers around the world by designing products that support, rather than disrupt, the delicate ecosystem of the eye.CONNECT WITH DR. DIANE HILAL-CAMPOInstagram → @trytwentytwentyABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.


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3 months ago
17 minutes 33 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - James Barlow - Use of complementary and alternative medicine (CAM) among people living with Sjögren's

An astonishing 84% of people living with Sjogren's reported using some form of Complementary and Alternative Medicine (CAM) in the past year. But what exactly are they using, why are they using it, and is it safe?In this research-focused presentation, pharmacist and Senior Lecturer James Barlow shares the results of a comprehensive survey on CAM usage among Sjogren's patients. He defines what "integrative" medicine truly means, breaks down the most popular CAM practices (from supplements like turmeric and Omega-3s to practices like acupuncture and yoga), and discusses the evidence—or lack thereof—for their effectiveness in managing Sjogren's symptoms.Watch this session to get an evidence-based perspective on CAM and learn why open communication with your healthcare team is crucial when integrating these approaches into your care plan.SESSION IN A GLANCE01:31 Understanding 'Integrative Medicine'03:55 Who Uses CAM? Patterns of Use07:04 The I-CAM Research Project and Survey Results09:54 Most Common CAM Practitioners and Treatments14:57 Deep Dive: Vitamins and Minerals16:59 Food Supplements and Omega Oils21:41 The Complexity of Herbal Medicines24:06 Turmeric: Food or Medicine?25:17 Reported Adverse Effects of CAM vs. Conventional Medicine26:45 Traditional Chinese Medicine (TCM) and Acupuncture29:21 Key Takeaways and the Importance of CommunicationABOUT JAMES BARLOWJames Barlow is a Senior Lecturer in the Department of Chemistry at RCSI University of Medicine and Health Sciences in Dublin, Ireland. He trained as a pharmacist and has a particular interest in natural products, including evidence-based complementary medicines. With 20 years of experience teaching students in courses on Pharmacognosy, CAM, and chemistry, he is an advocate of the evidence-based use of CAM approaches in an integrative context.CONNECT WITH JAMES BARLOWWebsite → https://people.rcsi.com/jambarlowSjögren's Ireland → https://sjogrensireland.ieSjögren's Synergie → https://sjogrens-synergie.euResearch Paper → https://link.springer.com/article/10.1007/s00296-025-05802-wABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
31 minutes 37 seconds

4th Virtual Sjogren's Summit 2025
Day 2 - Melanie McNally - Movement, Mindfulness & Moisture: A Holistic Yoga Therapy Approach to Sjögren’s

This session offers an introduction to yoga therapy—what it is, how it differs from a typical yoga class, and why it can be especially supportive for individuals living with Sjögren’s Syndrome. Rooted in accessible, therapeutic practices, this approach blends gentle movement, breathwork, and mindfulness to address common symptoms like fatigue, joint pain, dryness, and emotional stress.


Join Certified Yoga Therapist and Sjogren's patient Melanie McNally as she shares her personal story of turning to yoga to manage her own symptoms. You'll learn how gentle movement can ease stiffness, how breathwork can calm an overactive nervous system, and experience a simple but powerful "12-Point Hand" breathing exercise you can use anytime, anywhere.


Watch now to discover a path to feeling more in tune with your body and learn take-home practices you can use daily to support your whole-person well-being.


SESSION IN A GLANCE

00:00 Introduction and Personal Healing Journey

03:38 How Yoga Therapy Helps

05:07 Understanding Yoga Therapy vs. Yoga

09:02 Guided Breathing Practice

12:14 How Movement Eases Dryness & Stiffness

13:28 Guided Gentle Movement Practice

19:52 Final Takeaways for Daily Practice


ABOUT MELANIE MCNALLY, C-IAYT


Melanie is a certified Yoga Therapist specializing in chronic illness, autoimmune conditions, and mental health support. Diagnosed with Sjögren’s Syndrome at age 25, she turned to yoga as a way to manage her symptoms and reclaim a sense of control, comfort, and connection. With over a decade of experience, she is certified in Yoga for Arthritis and holds a 1000-hour yoga therapy certification. Her compassionate approach helps others living with Sjögren’s feel seen, supported, and empowered to care for themselves from the inside out.


CONNECT WITH MELANIE MCNALLY, C-IAYT


Website → www.MelanieYoga.com

LinkedIn → https://www.linkedin.com/in/melaniemcnally/


ABOUT THE VIRTUAL SJOGREN'S SUMMIT


The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Show more...
3 months ago
22 minutes 1 second

4th Virtual Sjogren's Summit 2025
Day 2 - Micah Yu - Anti Inflammatory diet for Sjogren's

Could the food you eat be triggering your Sjogren's flares? And more importantly, can food be used as medicine to calm them down?In this practical and science-backed session, quadruple board-certified integrative rheumatologist and autoimmune patient, Dr. Micah Yu, breaks down the fundamentals of an anti-inflammatory diet for Sjogren's. He explains why certain foods can trigger inflammation, which foods help fight it, and why there is no "one-size-fits-all" approach.Watch now to learn about the power of the Mediterranean diet, the importance of fiber and phytonutrients, and get a sample meal plan you can start using today to take control of your health.SESSION IN A GLANCE00:00 Introduction to Anti-Inflammatory Diets02:05 Why Food is Medicine for Autoimmune Conditions03:43 What is the Mediterranean Diet?04:19 Eating the Rainbow: The Power of Phytonutrients05:53 The Importance of Fiber for Fighting Inflammation07:40 Omega-3 Fatty Acids vs. Omega-6 Fatty Acids09:12 Pro-Inflammatory Foods to Avoid10:36 Other Considerations: Gluten, Dairy, and Nightshades13:07 The Power of Anti-Inflammatory Herbs and Spices14:17 Practical First Steps: Addition, Not Subtraction15:22 A Sample Anti-Inflammatory Meal PlanABOUT DR. MICAH YUDr. Micah Yu is an integrative rheumatologist who incorporates complementary medicine with traditional rheumatology. He is quadruple board-certified in Rheumatology, Internal Medicine, Integrative Medicine, and Lifestyle Medicine, and is a graduate of the Andrew Weil Integrative Medicine Fellowship. As an autoimmune patient himself, he has a unique perspective on arthritis and autoimmune disease. Dr. Yu is the co-founder of Dr. Lifestyle, an integrative and functional medicine clinic, and the founder of MYAutoimmuneMD, an educational platform for patients with autoimmune conditions.CONNECT WITH DR. MICAH YUWebsite → www.myautoimmunemd.com & www.drlifestyle.orgSocial Media → @myautoimmunemd (YouTube, Instagram, TikTok, Facebook)ABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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3 months ago
17 minutes 10 seconds

4th Virtual Sjogren's Summit 2025
Day 1 - Gavin Marshall - Development of Sjogrens Australia

"Men don't get Sjögren's." "You're just anxious." "There are no treatments anyway." What happens when a firefighter, a dad, and a previously healthy man is dismissed by the very system he trusts?In this powerful and inspiring session, Gavin Marshall shares his personal journey from a frustrating, years-long struggle for a diagnosis to founding a national patient advocacy organization. Hear the raw details of being dismissed by multiple specialists, the moment a doctor finally said, "I believe you," and the determination that led him to build Sjögren’s Australia from the ground up with no budget—only motivation.Watch this session to understand the unique challenges faced by men with Sjögren's and to witness an incredible story of turning a negative into a positive to ensure no one has to navigate this disease alone.EPISODE IN A GLANCE00:00 Not Your Typical Sjogren's Patient01:09 A Frustrating Diagnostic Journey03:42 The Rheumatologist Gauntlet07:09 The Turning Point and Diagnosis09:11 From Patient to Advocate10:53 Building Sjogren's Australia14:29 Marker14:42 Our Mission and Vision17:33 A Final Message of HopeABOUT GAVIN MARSHALLGavin Marshall is a leading firefighter, qualified plumber, and the founding director of Sjögren’s Australia. After being diagnosed with Sjögren’s following years of unexplained fatigue, joint pain, and medical dismissal, Gavin turned his personal struggle into a mission to help others. He founded Sjögren’s Australia to raise awareness, advocate for patients, and push for better research and support across the country. His journey has been shaped by resilience, loss, and a deep desire to ensure others don’t face this disease alone. Balancing family life, firefighting, and chronic illness, Gavin is committed to creating lasting change.CONNECT WITH GAVIN MARSHALLFacebook → https://www.facebook.com/sjogrensausWebsite → www.sjogrensaustralia.com.auDonate to Sjogren's AUstralia → https://buy.stripe.com/3cs6oT0pk7h715mcMMABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.SLIDES LINKhttps://drive.google.com/file/d/1LtYhID1hncQvjAB5LPW_lqlWxolqKLyz/view?usp=drive_link

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3 months ago
19 minutes 45 seconds

4th Virtual Sjogren's Summit 2025
The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.