Paul Bugeja and FSHD
Diagnosed at age 35 vibrant Paul Bugeja shares his personal journey with Facioscapulohumeral Muscular Dystrophy (FSHD).
In this conversation with humour and enthusiasm Paul reflects on the signs of FSHD that were present in his childhood, the importance of exercise, and how he views his condition as an opportunity for growth rather than an obstacle.
Paul emphasises the significance of embracing uncertainty, finding joy in ‘collecting souls’, his involvement in advocacy organisations while sharing his journey of writing a book about his experiences with FSHD.
SHOW NOTES
FSHD Global https://fshdglobal.org
Muscular Dystrophy Australia https://www.mda.org.au
Muscular Dystrophy Queensland https://mdqld.org.au
Muscular Dystrophy Foundation Australia https://mdaustralia.org.au