Duchenne through a mother’s eyes: Linda Williams and DMD

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You, Me & Muscular Dystrophy

Leannes Wheel Life

10 episodes

6 days ago

Exploring muscular dystrophy one story at a time. Sharing the lives of the wonderful people that make up the muscular dystrophy community in my unique podcast series talking to people, their families and caregivers that live with the many forms of muscular dystrophy. If you or anyone you know would like to be involved in this podcast, I'd love to hear from you. My contact details will be in the notes below and I'm also on Instagram and Facebook under Leanne's Wheel Life.

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Personal Journals

Society & Culture

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Duchenne through a mother’s eyes: Linda Williams and DMD

You, Me & Muscular Dystrophy

28 minutes 43 seconds

1 month ago

Duchenne through a mother’s eyes: Linda Williams and DMD

In this conversation, Leanne Watson speaks with Linda Williams, a mother and primary caregiver to her son Harrison, who has Duchenne muscular dystrophy.

They discuss the challenges and realities of living with DMD, including the impact on family life, the importance of advocacy, and the need for better accessibility and support systems.

Linda shares her journey of navigating the healthcare system, the housing crisis made worse by lack of inclusively designed homes, and the emotional toll of caregiving, while also highlighting the joy and hope that can be found in family and community support.

Links to resources.

Harrison's pages are:

Instagram: @harrison_and_duchenne

Facebook: facebook.com/harrisonandduchenne

TikTok: @harrisonandduchenne

Other links:

Carers QLD. https://carersqld.com.au

Muscular dystrophy Queensland https://mdqld.org.au

Facebook 'Duchenne Australia - Support Group'

https://www.facebook.com/groups/820692598018113/