What happens when a routine newborn screening turns into life-changing news?

In this episode of  "What is Public Health" podcast , I talk with Dr. Jennifer Brown — scientist, mom, and author of When the Baby is Not Okay: Hope’s Genes. We dive into her personal story of navigating the emotional rollercoaster that followed her daughter’s unexpected screening results, and how it led her to write a book that’s part memoir, part call to action.

Jennifer shares what it was like to go from researcher to parent facing uncertainty, what she wishes more people knew about newborn screening, and how families can find strength, support, and hope during overwhelming times. We also talk about how newborn screening has changed over the years, what still needs improvement, and why protecting these public health programs really matters.

This episode is for anyone who’s ever faced an unexpected diagnosis, supported a loved one through a health journey, or wants to better understand how newborn screening can be a powerful tool for early care.

It’s a reminder that even in moments of uncertainty, there is strength, connection, and hope — and that through stories like Dr. Brown's journey, we can all learn how to better support families and protect the programs that help them thrive.

Guest:
Dr. Jennifer Brown, author of When the Baby is Not Okay
Learn more at jjbrownauthor.com