Live Episode: Spina Bifida and Dwarfism Awareness Month + An Adaptive Wheelchair Costume Retrospective

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What Am I Thankful For

What am I Thankful For

9 episodes

5 days ago

We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.

Parenting

Kids & Family

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Parenting

Kids & Family

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Live Episode: Spina Bifida and Dwarfism Awareness Month + An Adaptive Wheelchair Costume Retrospective

What Am I Thankful For

44 minutes 53 seconds

4 years ago

Live Episode: Spina Bifida and Dwarfism Awareness Month + An Adaptive Wheelchair Costume Retrospective

We discuss the following: -Additional Goals for the Podcast Create awareness towards Local, State and Federal programs that help families with children that have disabilities How we manage to balance Maddux's schedule and needs with our marriage and professional goals -Current Events that have happened since deciding to release the pod Every special needs parent's nightmare! Maddux's horrific accident at school (9/7/21) that landed him the Emergency Room The struggles of trying to get him back to in-person schooling SAFELY How the public school system treats children with disabilities -Halloween - An Adaptive Wheelchair Costume Retrospective Why Maddux's Halloween Costumes are so important to us Blog Post: https://thankfulforpod.wordpress.com/2021/10/25/wheelchaircostume-2/ News coverage and support -Spina Bifida & Dwarfism Awareness Month (October) What does it mean to have a child with Spina Bifida? What does it mean to have a child with Dwarfism? A Dual-Diagnosis -Abortion Story of Matteo: https://apple.news/AbJMiavRSQxew4SwE-QCRig Doctors seem to talk families into abortion during the diagnosis Mentioned: @keep_goin_owen Hope you enjoyed the show, please check out the website: https://www.thankfulforpod.com/