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What Am I Thankful For
What am I Thankful For
9 episodes
2 days ago
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
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Parenting
Kids & Family
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We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
Show more...
Parenting
Kids & Family
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Episode 5- Fetal Surgery for Spina Bifida (Part 2/2)
What Am I Thankful For
34 minutes 54 seconds
3 years ago
Episode 5- Fetal Surgery for Spina Bifida (Part 2/2)

As we continue to tell our story of Fetal Surgery at UCSF we get into post-surgical and recovery topics such as:

-The 1st ultrasound after fetal surgery

-How to help your loved ones in the hospital

-Life on bedrest

-A surprise request to sign a DNR order at the worst possible time

-A THANK YOU to nurses

-The outpouring of support for Maddux (including his namesake)

-My baby is no longer moving/kicking

-Our car gets towed in SF, insult to injury

-The Fetal Surgery PLAYBOOK


What Am I Thankful For
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.