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What Am I Thankful For
What am I Thankful For
9 episodes
2 days ago
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
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Parenting
Kids & Family
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All content for What Am I Thankful For is the property of What am I Thankful For and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
Show more...
Parenting
Kids & Family
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Episode 5- Fetal Surgery for Spina Bifida (Part 1/2)
What Am I Thankful For
30 minutes 37 seconds
3 years ago
Episode 5- Fetal Surgery for Spina Bifida (Part 1/2)

In Episode 5, we discuss the amazing experience that is Fetal Surgery to repair Spina Bifida (Myelomeningocele).  This process includes a surgical repair to a fetus at roughly the half-way point of a pregnancy.  The baby is operated on in-utero and then placed back into the uterus to continue the pregnancy for as long as possible until a "second-birth" is needed.  This procedure comes with some major benefits but also several risks to an otherwise healthy mother and her baby.  We share the entire experience leading up the the day of surgery in this episode.

Subtopics include:

-The MOMS trial: https://www.chop.edu/centers-programs/center-fetal-diagnosis-and-treatment/management-myelomeningocele-study 

-A breakdown of some of the positive outcomes of Fetal repair 

-Avoiding the s-word (Shunt)  

-What we were hoping to gain from Fetal Surgery 

-We began to educate our family and friends around the diagnosis, the plan for fetal surgery and potential outcomes 

-Traveling to UCSF: https://fetus.ucsf.edu/spina-bifida/ 

-Navigating career challenges and paid leave 

-Subtle coincidences 

-A fearless mother on the day of surgery

Thank you for listening!

www.thankfulforpod.com


What Am I Thankful For
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.