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What Am I Thankful For
What am I Thankful For
9 episodes
2 days ago
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
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Parenting
Kids & Family
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All content for What Am I Thankful For is the property of What am I Thankful For and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
Show more...
Parenting
Kids & Family
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Episode 4- Spina Bifida Diagnosis 2/2
What Am I Thankful For
39 minutes 47 seconds
3 years ago
Episode 4- Spina Bifida Diagnosis 2/2

In Episode 4, we continue to unpack the moments and reactions to receiving Maddux's diagnosis of Spina Bifida.  In this episode, we take a deeper dive into how we dealt with our feelings and depression.  How we each managed to pick ourselves up from depression and mourning and see the light that would lead to an important decision.  How would we proceed with this pregnancy?

Other subtopics:

-We believe that families should have the right to choose how they proceed post-diagnosis 

-The 2nd opinion that set us back on track 

-Bedside manner and connection is so important 

-The best advice we have ever received 

-RESEARCH - RESEARCH - RESEARCH 

-What Do You Do Dear? Blog

-#spinabifida #spinabeautiful

-What do families affected by Spina Bifida look like?

-What would happen to our family?

-Meeting with the Jenkins

-Are we really doing this Fetal Surgery thing??


www.thankfulforpod.com

What Am I Thankful For
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.