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What Am I Thankful For
What am I Thankful For
9 episodes
6 days ago
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
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Parenting
Kids & Family
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We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
Show more...
Parenting
Kids & Family
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Episode 3- Spina Bifida Diagnosis Part 1/2
What Am I Thankful For
31 minutes 32 seconds
3 years ago
Episode 3- Spina Bifida Diagnosis Part 1/2

In Episode 3, we discuss the events surrounding Maddux's diagnosis of Spina Bifida.  This diagnosis happened in the first trimester of the pregnancy and forced us to deal with the so many emotions.  Any parent that has faced the diagnosis of a disability or abnormality can relate to our account of the story.

Other subtopics include:   

-Infertility struggles recap  

-Nutrition Response Testing (For Fertility)

-What causes Spina Bifida?     

-Folic Acid/Folate Supplements   

-Don't blame yourself (even though you will!)   

-Genetic Testing   

-Diagnosis Day   

-When doctors recommend abortion   

-The different phases of diagnosis grief

  • Shock  
  • Denial  
  • Anger  
  • Depression  

-Get off the mat and do your research!     

-2nd Opinion  

-Decision timetables

-Fetal Surgery https://fetus.ucsf.edu/spina-bifida/   

www.thankfulforpod.com

What Am I Thankful For
We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.