Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
One of the things that continues to amaze and inspire me on this journey of being the parent to a child with special needs, is the incredibly kind and compassionate people we meet along the way. The people who were not brought into this community through the birth of a child, but came here intentionally, with purpose and an enormous heart.
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Patrice Carroll is the director of PWS services for both children and adults at Latham Centers. Patrice, co-chair of the PWSA (USA) Professional Providers Board as well as a member of the International Prader Willi Syndrome Organisation Professional Providers and Caregiver’s Advisory Board and has over 20 years of experience working with children and adults diagnosed with PWS.
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Katrina Fryklund Started at Latham Centers in 2013 as Development Associate, and was promoted to Director of Development. She is now a member of the Admissions team as Director of National Outreach.
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Brittni Kliment is Director of Program Marketing and Admissions. She started at Latham Centers in 2012 as a classroom teacher. She quickly became the Assistant Principal, and then Director of Education, serving as an administrator while working with the students.
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In 2020, during COVID-19, Patrice, Katrina, and Brittni created and currently facilitate a PWS Virtual Community to strengthen relationships for individuals with PWS around the world.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
