Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Ep77: PWS Strategies and Gratitude with Emily Felt
Walking with Freya
44 minutes 2 seconds
4 years ago
Ep77: PWS Strategies and Gratitude with Emily Felt
Emily Felt is a friend I have made on this journey with PWS. We first met in person in the cafeteria of UCSF. She and her daughter Oli drove from Davis to meet Freya and I before an appt. As you’ll hear, we both value our relationships, strive for gratitude and a healthy positivity, and believe in the importance of building community. She’s been on the podcast a few times and always brings an enlightening freshness and beautiful sentiments to the conversation.
We spoke about some practical logistics in raising a child with PWS—having clear boundaries, food safety in social situations and home, anxiety and how it manifests (like perseveration, skin picking, and food obsessing), and strategies for managing the anxiety and accompanying behavior. Here’s a clue, empathy is a great start!
Emily also talked about the importance of gratitude and ways to bring more into your daily life and the life of your family.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
