Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Ep74: PWS Community Challenge for PWS Awareness Month
Walking with Freya
14 minutes
4 years ago
Ep74: PWS Community Challenge for PWS Awareness Month
May is Prader-Willi Awareness Month! Woohoo! To honor this, and help grow and strengthen an already strong, supportive community, I have created a social media challenge. This quick episode is an on the fly explanation of the challenge and how you, a parent, caregiver, or care provider to someone with PWS, can participate. Please follow @walkingwithfreya on IG or join the FB group @PWSCommunityChallenge to participate! I look forward to meeting you all there!
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
