Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Ep 87: Vulnerability and Healing with Molly, a Sibling
Walking with Freya
1 hour 10 minutes
1 year ago
Ep 87: Vulnerability and Healing with Molly, a Sibling
This conversation begins right in the middle of vulnerability, smack dab in the middle of reflection growth, and healing, and I thought it was a beautiful way to start. For context I’ll tell you that Molly’s sister, Brooke is almost 50 and lives in Michigan. Molly is her younger sister and her guardian living in CA. She grew up in a house where her sister’s disability, or emotions for that matter, were rarely, if ever, discussed. This has sent Molly on a quest to understand the repercussions of being left out of the conversation. While grief and emotional suffering have been a part of her journey, she is finding her way to connection, growth and healing, and it is beautiful to witness.
In the middle of this all, there is also some great information on what guardianship looks like and one approach to caring for an adult with PWS and the logistics around that. And of course, wise advice for parents on how to raise siblings alongside a child with PWS.
For those interested in poetry, especially poetry about parenting a child with disabilities, there is a special treat at the end of the conversation. Find the link to my new poetry collection, "Victory Garden", in the show notes.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
