Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Ep 86: Alliance Against Seclusion & Restraint with Guy Stephens
Walking with Freya
48 minutes
2 years ago
Ep 86: Alliance Against Seclusion & Restraint with Guy Stephens
Guy Stephens is the Founder and Executive Director of the Alliance Against Seclusion and Restraint. First we discuss what restraint and seclusion in schools looks like, the origins of behvior in individuals, and the work that AASR does. The heart wrenching part of the episode is the stories of kids who have suffered under these archaic actions. The inspiration is in the work AASR has and still is doing, and the ways that families can seek help or offer it. Please check the show notes for the link tree to reach out the the organization, support their cause, buy merch, listen to the podcast and more. I found this episdoe to be incredibly enlightening and plan to share it widely to spread the word. I hope you will do the same.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
