Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
All content for Walking with Freya is the property of Anne Fricke and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
I recently had the fabulous pleasure of attending the United in Hope Convention, hosted by PWSA USA, in Orlando, FL. I had such an amazing time meeting parents I’ve only spoken with over the phone or computer, learned some valuable information to benefit Freya and our family, and was gratefully reminded of what a lovely and suppotive community we have in the PWS world. I also had a freaking blast! I invited two of the organizers, Kristi Rickenback and Angela Frazier, on to talk about the conference, what was offered, how it went, and what we can look forward to in the future.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
