Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Yes, this is a shameless plug for a new online resource…BREATHE - Bringing Resources, Education, & Advocacy To Homes Everywhere - is a new and growing online space for families of individuals with disabilities and atypical needs. Created by the mother of a daughter with Prader-Willi Syndrome, BREATHE hopes to inspire and educate parents and caregivers on how to include self-care in their lives while offering education and skill-sharing to benefit the development of our loved ones with disabilities. With downloadable classes, resource links, free content, story sharing, and interactive community space, BREATHE strives to help families and caregivers in the disability community breathe a little easier.
In this episode I talk about BREATHE and what you’ll find there, but I also get a bit personal about Freya and what she’s been going through, and why I won’t be discussing her publicly so much any more. I’m ready to go deep with parents and siblings again, so please send me an email if you’re up for having a conversation with me for this podcast.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
