Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
Annie Treml grew up the older sibling to a sister with autism and an intellectual disability. She is a former school psychologist, counselor, and college instructor and now uses her education and her experience to help families find connection among the chaos so that everyone’s needs are met.
Anne shared with us sweet details about her relationship with her sister and then spoke frankly and without judgment about the typical ways that siblings may feel and react to having a child with a disability or atypical needs in the family. She offered advice on how to start the much-needed conversations around everyone’s experiences and how to prepare our children for the responsibilities of caretaking once the parents are no longer around. I’ll give you a hint, as Annie says, “It doesn’t have to feel heavy.”
If you’re interested in learning more about Annie and the work that she does with families, you can visit her website at annietreml.com.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
