Real voices. Real stories. Demystifying Narcolepsy One Symptom at a Time. Diving into the real-life experiences of individuals living with narcolepsy, by providing detailed information centred around how they each experienced one of the symptoms prior to receiving a diagnosis.
Waking Up Tired: Narcolepsy Symptoms Explained is a limited podcast series that amplifies the lived experiences of people with narcolepsy, offering insight into what thesymptoms truly feel like — from the patient’s perspective.
My name is Di Spillane, and I live with narcolepsy type 1 in Australia. Although my symptoms began around age nine, I wasn’t diagnosed until I was 49.
Learning about narcolepsy changed everything — and inspired me to raise awareness, hoping others might recognise their own symptoms and seek a diagnosis.
Not everyone experiences all symptoms, and each person’s journey is different.
This podcast series shares real stories from people living with narcolepsy — because symptoms alone don’t capture what it’s truly like. We believe lived experience speaks louder.
Waking Up Tired: Narcolepsy Symptoms Explained launches September 22, 2025, wherever you get your podcasts.
Links:
https://wakinguptiredcom.wordpress.com/
https://www.facebook.com/WakingUpTiredBlog/