Real voices. Real stories. Demystifying narcolepsy one symptom at a time.

Waking Up Tired: Narcolepsy Symptoms Explained - Excessive Daytime Sleepiness.

Diving into the real-life experiences of individuals living with narcolepsy, by providing detailed information centred around how they each experienced one of the symptoms prior to receiving a diagnosis.

Despite increased public education, misperceptions persist. Symptoms like EDS are sometimes mistaken for laziness or disinterest, leading to emotional distress, social stigma, and delayed treatment.

Not everyone experiences all symptoms, and each person’s journey is different. This is why host Di Spillane decided to create this series, to give voice to what narcolepsy symptoms are like from a patient's perspective.

In this first episode, this week's guest Belinda shares her experiences of the one symptom that every person with narcolepsy experiences which is Excessive Daytime Sleepiness, or EDS.

EDS is often the first symptom to appear, but because it overlaps with so many other conditions, it’s frequently misunderstood or misdiagnosed, Belinda's diagnosis was delayed many year's for this very reason.

If you’re listening and recognise parts of your own journey in what you hear, then please speak to your doctor.

This podcast exists to raise awareness, foster understanding, and help others find the diagnosis and support they deserve — sooner, not later.

Join us next time as we continue exploring narcolepsy through real voices and lived experiences.

This independent podcast is the sole creation of Di Spillane. To get in touch, please contact Di via the Waking Up Tired website. https://wakinguptiredcom.wordpress.com/

Thanks to the members of the Living With Narcolepsy In Australia Facebook group for sharing their experiences for the series.

Thank you for listening to Waking Up Tired.

Available wherever you listen.