She's got a G-tube, J-tube, TPN and half a million social media followers. Meet Steph Kelly, a Sydney nurse who's built a colossal community by candidly sharing what it's like to live with feeding tubes, frequent hospital stays and a lengthy list of conditions – including hyper-mobile Ehlers Danlos syndrome, POTS, and serious heart issues – all while leading a full, and often very fun life. Come behind the scenes of Steph’s viral posts as I spend a morning with this incredible advocat...
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She's got a G-tube, J-tube, TPN and half a million social media followers. Meet Steph Kelly, a Sydney nurse who's built a colossal community by candidly sharing what it's like to live with feeding tubes, frequent hospital stays and a lengthy list of conditions – including hyper-mobile Ehlers Danlos syndrome, POTS, and serious heart issues – all while leading a full, and often very fun life. Come behind the scenes of Steph’s viral posts as I spend a morning with this incredible advocat...
Let’s visit Sydney’s sunny suburb of Gymea and spend a day with a charming almost-three-year-old and his family, shall we? Luke Joseph has been tube-feeding since the day he was born and while he kept his parents, Eliana and Michael, and many medical professionals guessing for 16 months, a super-rare genetic condition turned out to be why. In this episode I encounter a dreamy tube-feeding supplies storage system (watch out Marie Kondo), a grandparent who has learned how to tube-feed (hi Kerry...
Tubie Talks
She's got a G-tube, J-tube, TPN and half a million social media followers. Meet Steph Kelly, a Sydney nurse who's built a colossal community by candidly sharing what it's like to live with feeding tubes, frequent hospital stays and a lengthy list of conditions – including hyper-mobile Ehlers Danlos syndrome, POTS, and serious heart issues – all while leading a full, and often very fun life. Come behind the scenes of Steph’s viral posts as I spend a morning with this incredible advocat...
