TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!
All content for TSC Talks! is the property of Jill Woodworth and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!
TSC Talks! Points of Light~Part Two~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens
TSC Talks!
1 hour 2 minutes
3 years ago
TSC Talks! Points of Light~Part Two~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens
SEE SHOW NOTES FOR PART ONE FOR MORE DETAIL! I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms.”
For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: leighanne.bianchi143@gmail.com
Timestamps for part 2: 0-52 Intro 00:54- Antonio’s Waitress Olivia treats them like humans, the start of the discussion on sexuality and special needs 2:26 All the PC of working w/special needs has made sexuality issues really challenging. People taken advantage of, they are developmentally younger and no one talks about this 5:03 Karaoke, real-world situations help 5:28 Dashboard confessionals, you can say stuff without eye contact when conversations about penises and vaginas come out. Pediatricians recommend using scientific wording, Leigh Anne took all the training on autism/special needs and sexuality and can talk candidly. 9:27 Why questions, keep asking them. See the question behind the action. One client wanted to see Leigh Anne’s breasts, curiosity, she didn’t react or file a report but discussed it with him. So many lives could be ruined if everything is flagged as inappropriate. This population never gets to ask questions 11:06 Leigh Anne had to spend 5 minutes spend w/individual who had sex offender charges in ISP and Leigh Anne knew charges were not true-example 13:16 Paying for Good Citizenship Project….if you have an autism diagnosis, sometimes easier to get funding, agencies often don’t want to pick up those with autism but things changing and agencies can help you get funding to cover through DESE/Wraparound Family Services, Public Partnerships through Participant directed programming conduit, Private pay, PCA funds, DDS Family Respite funds 20:11 Leigh Anne should be paid more for all she offers. Charges $30/hour but will work with families. Leigh Anne does not have a BCBA or other letters after the name that would allow her to be recognized as a service agent but has the lived experience and work experience to exceed those with mere education 23:26 Becoming a non-profit would mean more strings attached, Johnny her horse would have to be certified as a therapy horse, her dog a pit bull mix, too many hoops to jump through. Jack couldn’t have used a log splitter! 26:31 Investor/philanthropist would be ideal with no strings attached. Leigh Anne took a chance w/Camp Marshall, wanting to partner and have it be her home base. If associated with an agency the volunteers would need to get paid. All benefits from GCP are not recognized as beneficial for many who don’t understand the depth of what she does. 31:31 Work to ride is an option or unpaid internship/apprenticeship. So much happens in learning these farm skills that is energetic…deciding how to perform tasks and learning from any mistakes, having the freedom to learn from mistakes like using a pitchfork instead of a shovel for a particular job… 34:21 Farmers giving the flexibility to figure out the approach to completing a job is helpful. So then it’s not regimented, can focus on the end results, not the niggling details and farmwork facilitates executive functioning in this area. Learning at the moment, the Montessori approach is part of Leigh Anne’s process
TSC Talks!
TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!
