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Trisomy Family Stories
SOFT UK
82 episodes
5 days ago
A collection of stories and experiences from families dealing with Trisomy 13 and 18.
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Parenting
Kids & Family
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All content for Trisomy Family Stories is the property of SOFT UK and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
A collection of stories and experiences from families dealing with Trisomy 13 and 18.
Show more...
Parenting
Kids & Family
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The TRIS Project and Its Impact
Trisomy Family Stories
44 minutes 30 seconds
9 months ago
The TRIS Project and Its Impact

Join us as we speak to Dr Bruns, SOFT UK Professional Advisor, Principal Investigator of the TRIS Project, and Retired Professor in the US. Dr Bruns shares her fascinating journey into the world of rare diseases, her involvement with SOFT UK, and her work on updating the TRIS Project - an important initiative dedicated to cataloguing information about babies and children with trisomy conditions.


Interested in enrolling? Visit the TRIS Project enrolment page: https://tris.siu.edu/survey/form/PreEnroll.php


To reach out to SOFT UK for support or get in contact, visit: https://www.soft.org.uk/getting-support

Trisomy Family Stories
A collection of stories and experiences from families dealing with Trisomy 13 and 18.