In this episode of Trials with Maya Z, Maya and patient expert and advocate Orit Rindner discuss the intersection of patient needs and clinical trials, highlighting real-world challenges and insights from rare disease research:

• The impact of standard of care on patient willingness to join clinical trials
• Challenges in rare disease trials and patient recruitment
• The importance of aligning clinical trials with patient realities

Follow Maya Zlatanova: https://www.linkedin.com/in/mayazlatanova/
Follow Orit Rindner: https://www.linkedin.com/in/oritrindner/  

• (00:00) - Chapter 1
• (00:00) - Introduction to Clinical Research and Patient Advocacy
• (02:28) - The Intersection of Patient Advocacy and Clinical Trials
• (04:49) - Patient Perspectives on Clinical Trials
• (06:47) - Engagement of Patients in Clinical Trial Design
• (10:11) - Isolated vs multidisciplinary approach
• (12:27) - The Role of Patient Advocates in Clinical Research
• (16:12) - Impact of Current Events on Clinical Research in Israel