Meet Joy Milne, a remarkable woman whose unique sense of smell is revolutionizing the world of Parkinson's research. In this episode, Joy shares her personal story of love, loss, and unwavering determination to make a difference in the lives of those affected by Parkinson's, from her groundbreaking work with researchers at the University of Manchester to her advocacy for greater awareness of the challenges faced by women with the disease.
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Learn more about Joy Milne and her work:
- https://www.nytimes.com/2024/06/14/magazine/parkinsons-smell-disease-detection.html
- https://www.npr.org/sections/health-shots/2020/03/23/820274501/her-incredible-sense-of-smell-is-helping-scientists-find-new-ways-to-diagnose-di
- (00:00) - Introduction to Joy Milne and her Advocacy Work
- (05:40) - Balancing Biotech Work and Caregiving
- (06:34) - Challenges in Parkinson's Research and Lack of New Medications
- (10:37) - Differences in Parkinson's Disease between Men and Women
- (14:18) - Encouraging Early Diagnosis in Parkinson's
- (16:56) - Variations in Parkinson's Care across Countries
- (18:43) - The Importance of Patient Engagement in Clinical Trials
- (21:04) - Challenges in Communication between Researchers and Patient Advocates
- (23:34) - The Benefits of a Person-Based Approach in Healthcare
- (25:49) - The Implications of Patient Public Involvement in Research
- (29:20) - Positive Changes and Future Outlook in Parkinson's Research
