This isn’t a story told after the storm—Kim is still in it. When her son Ezra was diagnosed with Angelman Syndrome, everything changed. From navigating medical systems to grieving the milestones that might never come, Kim shares what it’s like to live inside a reality most people only discuss once they’ve survived it.
She’s honest, emotional, and real about what it takes to show up every day for a child whose needs the world rarely understands.
For anyone walking through the unknown—this conversation is for you.
Learn more about Angelman Syndrome here:
https://www.mayoclinic.org/diseases-conditions/angelman-syndrome/symptoms-causes/syc-20355621
