Heidi and Jenny discuss summer camps, School ESY and just hanging out all day long for the dog days of summer.
Heidi has had a fun time with Sex Ed . Jenny vents about people just not getting it. Disability rights are at risk, disability moms are mad!
IMO we are Mom MD, but really we are MOM,IMO., OMG., LOL
Jenny discusses hospital life and the hot doctors that showed up for Manolia.
Jenny and Heidi discuss AI, boobs and being jealous of others.
Heidi has a birthday. Jenny and Heidi discuss getting older with complex kids. Also, RIP Hermione the chicken.
Jenny goes to cardio pilates and has a realization about her body. Perimenopause and bigger boobs. Neurogene trial update and questions for each other. Good times.
Heidi and Jenny chat about vacations and how great the experience can be. Jenny gets wistful for siblings to play independently. The dichotomy of complex parenting.
Hippos are dangerous animals and having nothing to do with hippotherapy. Also, we have some hot gossip about we have heard about Medicaid.
Heidi and Jenny discuss life changing Medicaid services, differences state by state and how this will impact the disability community.
Jenny bans her self from listening to the rest of The Telepathy Tapes podcast. Heidi hasn't slept.
Heidi and Jenny discuss The Telepathy Tapes podcast, being woo woo and the idea that nonverbal kids have special powers.
Heidi and Jenny discuss preparing for emergencies while living in areas that have natural disasters. Sharing tips from good resources and bad advice from experience. Take a listen. How prepared are you?
Its a New Year. Heidi and Jenny discuss a couple of highlights from 2024. The fires in Los Angeles, Jenny's home for 25 years. Then a look forward to 2025
Holiday gifts ideas, Ellie gets new orthotics and we are gearing up for the end of the year.
Jenny has a bad week, lashes out via text, apologizes, gets hives. Stress takes a toll and seizures really do cause PTSD and CTSD. Heidi commiserates and also brings levity to Jenny's circumsstances.
As Heidi and Jenny discuss the extremem highs and lows of complex parenting. Jenny gives her review of Out of my Mind. At least she tries to. Its a must see
Its been a very dramatic week of extreme highs and devastating lows for the Rett Syndrome community. Listen as Heidi and Jenny process the information. Heidi is Nancy Drew and Jenny is just hanging on..
OMG! Neurogene released an update on the gene therapy trials for Rett Syndrome and we are thrilled, excited and cautious. Exciting newsthat we can't fully be excited about but also can't stop ourselves from being excited, GAH!
Neurogen tells us what is happeing in the clinical trial...al l we can say is...Let's go!