14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

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TheFifty1Percent with Shreya Patel-Parekh

Shreya Patel-Parekh

116 episodes

6 days ago

Welcome to thefifty1percent - the podcast for women over 30 ready to take control of their health and wealth. Juggling work, family, and personal goals can leave little room for you. Here, we have real conversations about the challenges women face, sharing practical insights and actionable strategies to help you prioritise yourself and make progress on your terms. No fluff, no one-size-fits-all advice - just honest support to help you create meaningful change. Hit follow to stay connected and explore our free resources to support your journey beyond the podcast.

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14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

TheFifty1Percent with Shreya Patel-Parekh

57 minutes 27 seconds

1 month ago

14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

Zainab Kaleemullah, co-leader of the Endometriosis UK support group for Birmingham and the Black Country, shares her inspiring story of living with severe endometriosis and adenomyosis, 14 years before getting the right diagnosis. She opens up about the emotional and physical toll of the condition, and the barriers many face in getting the rightcare. Endometriosis affects 1 in 10 women, yet it is still widely misunderstood. This honest conversation is for anyone wanting to better understand the condition and support those affected.

Join us as we dive into the basics of endometriosis and why early diagnosis matters, and how cultural stigma and medical misinformation still stand in the way of effective treatment. This is an honest, informative conversation that sheds light on a condition that affects 1 in 10 women, yet is still so misunderstood.

What we Cover:(02:43): Zainab Kaleemullah’s background
(06:40): Why Early Diagnosis Matters
(08:49): What is Endometriosis?
(13:17): Why We Still Don’t Know What Causes Endometriosis
(21:02): Cultural Barriers to Treatment
(26:57): How Endometriosis Affects Organs Inside the Body
(33:16): Periods and Taboos in South Asian Communities
(38:21): The Importance of Speaking Openly About Menstrual Health
(45:20): When Endometriosis Is Misdiagnosed as Mental Illness or IBS
(49:38): Why Advocacy and Self-Education Are Vital for EndometriosisConnect With Shreya:LinkTree: https://linktr.ee/thefifty1percent

Instagram: https://www.instagram.com/shreyapatelparekh

Instagram 51%: https://www.instagram.com/thefifty1percent/

LinkedIn: https://www.linkedin.com/in/shreyapatelparekh/

Website: https://www.thefifty1percent.com/

YouTube: https://www.youtube.com/@thefifty1percent

Endometriosis Support:

Website https://www.endometriosis-uk.org/support-group/36556

IG: https://www.instagram.com/endouk_bham_blackcountry/

Endometriosis UK: https://www.instagram.com/endometriosis.uk/
Facebook: https://www.facebook.com/groups/260221620794665

Book: https://www.amazon.co.uk/Endometriosis-Experts-Guide-Manage-Symptoms/dp/1785041479