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The Value Brief
The Center for Innovation and Value Research
6 episodes
3 days ago
Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.
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Medicine
Health & Fitness
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All content for The Value Brief is the property of The Center for Innovation and Value Research and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.
Show more...
Medicine
Health & Fitness
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Breaking Barriers: Transforming Rare Disease Patient Engagement (Part 2) – Trust, Transparency, and Technology
The Value Brief
20 minutes 25 seconds
8 months ago
Breaking Barriers: Transforming Rare Disease Patient Engagement (Part 2) – Trust, Transparency, and Technology

In this second part of our conversation with Adrian Kielhorn (Alexion, AstraZeneca Rare Disease) and Charlene Son Rigby (CEO of Global Genes), we continue exploring the challenges and opportunities in rare disease patient engagement. This episode examines the role of pharmaceutical companies and healthcare providers in building trust, the importance of transparency, and the impact of real-world evidence, AI, and emerging technology on patient outcomes. 

Register for the Center for Innovation & Value Research's 6th Annual Methods Summit, March 19, 2025: 

On-Site Registration: https://ow.ly/T59550UUorW
Live-Stream Registration: https://ow.ly/CAMH50UUorU

The Value Brief
Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.