Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other.
P.S. we are not a glum lot!
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Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other.
P.S. we are not a glum lot!
Rare thoughts on the #Rarewarrior 5 x 5 challenge!
The Rare hour with Christopher Velona
18 minutes 19 seconds
2 years ago
Rare thoughts on the #Rarewarrior 5 x 5 challenge!
In this episode, we break down all of the sponsors and the fun day for the second, annual Rare warrior 5 x 5 challenge
The Rare hour with Christopher Velona
Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other.
P.S. we are not a glum lot!
