40. Meet an Expert: Wes Michael, President at Rare Patient Voice

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The Rare Disorder Podcast

Shivani Vyas

43 episodes

1 day ago

The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast

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40. Meet an Expert: Wes Michael, President at Rare Patient Voice

The Rare Disorder Podcast

30 minutes 10 seconds

3 years ago

40. Meet an Expert: Wes Michael, President at Rare Patient Voice

Show Notes:

In this episode, I chat with Wes Michael, President at Rare Patient Voice.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.

Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

While Rare Patient Voice started by focusing on rare diseases, they now welcome patients and caregivers with all medical conditions.

Rare Patient Voice takes an active approach to meet patients at conferences and events. Their phone is always open to members. The more they can engage with patients, the more they can advocate for them and help their voices be heard.

Explore more!

Website: https://rarepatientvoice.com/

LinkedIn: https://www.linkedin.com/company/rare-patient-voice/

See you all next week!

- Shivani Vyas ☺

@raredisorderpod on IG, FB, & Twitter, The Rare Disorder Podcast on LinkedIn
https://linktr.ee/theraredisorderpodcast