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The Rare Disorder Podcast
Shivani Vyas
43 episodes
2 days ago
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
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Natural Sciences
Science
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All content for The Rare Disorder Podcast is the property of Shivani Vyas and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
Show more...
Natural Sciences
Science
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37. Rare Disease Week + Meet a Fighter: Daniel Dry Dock Shockley, Retired Navy & 10-year Hereditary Colon Cancer Warrior
The Rare Disorder Podcast
53 minutes 19 seconds
3 years ago
37. Rare Disease Week + Meet a Fighter: Daniel Dry Dock Shockley, Retired Navy & 10-year Hereditary Colon Cancer Warrior

Show Notes:

In this episode, I chat with Daniel Dry Dock Shockley, a retired Navy, a veteran, and a 10 year hereditary colon cancer warrior.

Daniel serves as a member of the University of Michigan Genetic Hereditary Testing (Might) Advisory Board and of the University of Texas Health Center, San Antonio, Texas, where he does live-case presentations for the Genetics in GI Malignancy multidisciplinary annual conferences.

Daniel says that his purpose is to educate the world about Attenuated Familial Adenomatous Polyposis (AFAP) and continuing the legacy of Dr. Henry T. Lynch, who emphasized the importance of early detection in a hope of saving lives.

Right now, Daniel is seeking legislative jurisdiction to designate the last full week of March as Hereditary Colon Cancer Syndrome Awareness Week. It's a daunting task and will take years to accomplish. However, he is “battle tested” and ready to lead the charge!

After three years of collaborating on March 23, 2021, Texas Senator Donna Campbell, M.D., sponsored Daniel’s HCC resolution initiative and presented the resolution on the Senate Floor, during Texas 87th Legislature Session.

Connect with Daniel!

Instagram: instagram.com/dandrydock___

Important Links: https://linktr.ee/Dandrydock

Episode Segments: 

  1. Intro
  2. Rare disease fact of the week
  3. Guest interview
  4. Q & A Session
  5. Outro

See you all next Saturday! 

- Shivani Vyas ☺

@raredisorderpod on IG & Twitter, The Rare Disorder Podcast on LinkedIn
https://linktr.ee/theraredisorderpodcast

The Rare Disorder Podcast
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast