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The Rare Disorder Podcast
Shivani Vyas
43 episodes
1 day ago
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
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Natural Sciences
Science
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All content for The Rare Disorder Podcast is the property of Shivani Vyas and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
Show more...
Natural Sciences
Science
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34. Meet a Fighter: Partial Trisomy Of 8q ft. Saida Mahoney
The Rare Disorder Podcast
12 minutes 57 seconds
4 years ago
34. Meet a Fighter: Partial Trisomy Of 8q ft. Saida Mahoney

In this episode, I chat with Saida Mahoney, a fighter of Partial Trisomy Of 8q.

Saida Luvenia Mahoney is 25 years old and lives in Oakland, California. She is an author and a proud student at Modesto Junior College, San Joaquin Delta College, and Merced College.

Saida is a performing arts major and creates music, does dance, and performs in theatre. She also does recording arts, songwriting, and acting. Saida is a Pageant Queen and was crowned 2021 California Miss Amazing Queen and was also a finalist at The Miss Amazing Nationals. In addition, she is a athlete for the Special Olympics, Miracle League, and AYSO Soccer. She loves to dance, cheer, and sing. 

Saida is a proud rare disease and disability advocate. One of her goals is to transfer to UCLA, UC Irvine, or UC Santa Barbara when she graduates from Modesto Junior College.

Some of her favorite music artists and bands include Don Henley, The Eagles, Justin Bieber, Glenn Frey, Joe Walsh, Timothy B Schmit, KT Oslin, Amy Grant, Vince Gill, The Doobie Brothers, Dolly Parton, Reba McEntire, Martina McBride, Deacon Frey, Lucy Walsh,  Katy Perry, Foreigner, Linda Ronstadt, Jackson Browne, James Taylor, Stevie Nicks, Lindsey Buckingham, Fleetwood Mac, Tom Petty, Jack Tempchin, Jojo Siwa, Bob Seger, and more!

Finally, she loves to travel, camp, go to the moves, and help others. Currently, she is getting many projects and foundations starting up regarding her rare disease advocacy!

Keep up with her advocacy journey!

Blog: https://drewsloversmoon.wordpress.com/2021/01/03/my-journey/

Facebook: https://www.facebook.com/OMGWHATSHAPPENINGWITHSAIDA/

Instagram: https://www.instagram.com/drewsloversmoon/

Her very own published book: https://www.wattpad.com/story/259234397?utm_source=ios&utm_medium=link&utm_content=share_writing&wp_page=create&wp_uname=DREWSLOVERSMOON&wp_originator=bB2OGyqdMAHwEBepVCAm99f4Qefqwd4PscGeT0WXFc%2Bq%2Bn3zL%2Fpo9avRH92bI09Xz5cc8gX0oIlEn0ArI%2BGF80ihE%2B%2BIEMBCl%2BEy3MPGdbMsZq10l29nMnvVsJcrMq%2Bi

The Rare Disorder Podcast
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast