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The Rare Disorder Podcast
Shivani Vyas
43 episodes
1 day ago
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
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Natural Sciences
Science
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All content for The Rare Disorder Podcast is the property of Shivani Vyas and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
Show more...
Natural Sciences
Science
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24. Meet a Partner: The Rare Disorder Podcast X R is for Rare ft. Annie Watson, Host
The Rare Disorder Podcast
50 minutes 55 seconds
4 years ago
24. Meet a Partner: The Rare Disorder Podcast X R is for Rare ft. Annie Watson, Host

In this episode, I chat with Annie Watson, a high school student, aspiring journalist and podcaster who has a rare sleep disorder called narcolepsy. She was diagnosed at 6 years old, and finally stepped into the rare disease community as a freshman in high school. She has been involved with Narcolepsy Network since 2018, and started her podcast, R is for Rare, in January 2021. She writes for her high school newspaper, works on set construction for her high school musicals, and is hoping to study journalism and political science in college next year.

Listen to her podcast, and follow along on her advocacy journey!

Apple Podcasts: https://podcasts.apple.com/us/podcast/r-is-for-rare/id1547442737

Spotify: https://open.spotify.com/show/1r3U5ahuNCIzPlxqzKvbmS?si=Dh0hsHVWR0SAX8wqD3qqrg&dl_branch=1

Instagram: https://www.instagram.com/risforrarepodcast/?hl=en

The Rare Disorder Podcast
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast