In Episode 13 we welcome Jen Lau, a dedicated advocate and mother who shares her journey navigating the complexities of her son Nathan's diagnosis of biliary atresia. After Nathan's diagnosis, he underwent a life-saving liver transplant at nine months from a living donor. Jen recounts the logistical challenges her family faced, the emotional toll of the diagnosis and the critical role of community support. You’ll enjoy listening to Jen’s openness about the need for parental grace and she talks about their unique journey towards finding a living donor for Nathan's liver transplant.
This transformative experience ignited Jen’s passion for advocacy in pediatric liver disease and transplantation. She has since held leadership positions in several organizations, including the Society of Pediatric Liver Transplantation (SPLIT) and the Starzl Network. In January 2022, she helped found BARE, Inc. (Biliary Atresia Research & Education) in order to support families affected by biliary atresia.
Jen combines her expertise in business management and human resources with her advocacy efforts, while she is also pursuing her Master’s in Public Health. She lives in the western suburbs of Chicago with her husband and two children.
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SPONSOR: The Pressing On Podcast is sponsored by the Children's Organ Transplant Association (COTA). https://cota.org