In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has recently undergone another procedure to update and replace her wires and device. In this candid conversation, Amybel opens up about the pros and cons of DBS surgery for dystonia. To connec...
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In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has recently undergone another procedure to update and replace her wires and device. In this candid conversation, Amybel opens up about the pros and cons of DBS surgery for dystonia. To connec...
Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
The Positive Twist - a podcast about dystonia
55 minutes
1 year ago
Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
This episode is in remembrance of Adam Kalinowski, who passed away just over a year ago. Dystonia Europe honors his profound impact and enduring legacy serving as our President and serving the Dystonia community. Adam was a passionate advocate for those affected by this rare disease. His untimely departure has left a void that is deeply felt by us all.As we mark one year since his passing, Adam's spirit continues to resonate in numerous initiatives. His contributions are vividly alive i...
The Positive Twist - a podcast about dystonia
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has recently undergone another procedure to update and replace her wires and device. In this candid conversation, Amybel opens up about the pros and cons of DBS surgery for dystonia. To connec...
