Welcome to The Positive Gene Podcast, where we help to light the path for those navigating hereditary cancer risks with empowerment and optimism. Hosted by Sara Kavanaugh, a cancer previvor and your guide through the world of genetics and proactive well-being from the patient perspective. Join us as we simplify the complexities, providing insights that empower you to confidently face challenges. Through engaging discussions, we’ll bridge the gap between scientific knowledge and everyday life of a cancer previvor or survivor. Tune in to discover the transformative potential of genetic awareness and join a community that embraces positivity through knowledge. Subscribe now for a dose of empowerment in every episode.
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Welcome to The Positive Gene Podcast, where we help to light the path for those navigating hereditary cancer risks with empowerment and optimism. Hosted by Sara Kavanaugh, a cancer previvor and your guide through the world of genetics and proactive well-being from the patient perspective. Join us as we simplify the complexities, providing insights that empower you to confidently face challenges. Through engaging discussions, we’ll bridge the gap between scientific knowledge and everyday life of a cancer previvor or survivor. Tune in to discover the transformative potential of genetic awareness and join a community that embraces positivity through knowledge. Subscribe now for a dose of empowerment in every episode.
Telling Our Stories Online: Researching ‘Previvorship’ in the Social Media Era
The Positive Gene Podcast
1 hour 10 minutes
2 months ago
Telling Our Stories Online: Researching ‘Previvorship’ in the Social Media Era
SummaryIn this episode of The Positive Gene Podcast, host Sara Kavanaugh takes the mic on the road in London with Dr. Stefania Vicari and Dr. Hannah Ditchfield of the University of Sheffield. Together, they explore how research into social media is reshaping what we know about hereditary cancer, advocacy, and the very word previvor.
Why does this matter? Because our digital footprints tell powerful stories — and understanding them helps us:
See how platforms influence stigma, visibility, and advocacy
Identify misinformation versus authentic support
Recognize the importance of representation and inclusivity in health narratives
Give both researchers and clinicians new insight into patient experience
This conversation highlights how essential research is in bridging the gap between lived experience, digital culture, and health care.
Resources & Links Mentioned
University of Sheffield Cancer Research – Previvorship in the Platform Society: https://sites.google.com/sheffield.ac.uk/previvorship
Instagram: https://www.instagram.com/previvorship_research/
Sage Journal: https://journals.sagepub.com/doi/10.1177/20563051251340862
FORCE: Facing Our Risk of Cancer Empowered – https://www.facingourrisk.org
Lynch Syndrome UK – https://lynch-syndrome-uk.org
Alive and Kick’n – https://aliveandkickn.org
FORCE XRAY – https://www.facingourrisk.org/XRAY
🎧 Listen now on your favorite podcast app and be sure to follow on Instagram @positivegenepodcast
Disclaimer: This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health.
The Positive Gene Podcast
Welcome to The Positive Gene Podcast, where we help to light the path for those navigating hereditary cancer risks with empowerment and optimism. Hosted by Sara Kavanaugh, a cancer previvor and your guide through the world of genetics and proactive well-being from the patient perspective. Join us as we simplify the complexities, providing insights that empower you to confidently face challenges. Through engaging discussions, we’ll bridge the gap between scientific knowledge and everyday life of a cancer previvor or survivor. Tune in to discover the transformative potential of genetic awareness and join a community that embraces positivity through knowledge. Subscribe now for a dose of empowerment in every episode.
