In this episode, I speak with Anne Muskopf. Anne is the Director of the Charlotte & Richard Okonow Parkinson's Family Support Program at the Jewish Family and Children Services in Waltham, MA. We discuss the value that community programs bring to people with PD as well as discuss the value of support groups.
You can find out more information about the Charlotte & Richard Okonow Parkinson's Family Support Program here: https://www.jfcsboston.org/Our-Services/Older-Adults/Parkinsons-Family-Support
To find local information about support groups you can go to he American Parkinson's Disease Association, Parkinson's Foundation, Davis Phinney, or Michael J. Fox Foundation websites
American Parkinson's Disease Association: www.apda.org
Parkinson Foundation: www.parkinson.org
Michael J. Fox Foundation: www.michaeljfox.org
Davis Phinney Foundation: www.davisphinneyfoundation.org
As we move from Women's History Month to Parkinson's Disease Awareness month, I felt it was important to take some time and talk about the impact of Parkinson's Disease on Women. Women are not diagnosed with PD as frequently as men and experience different symptoms of Parkinson's that will impact their lives differently than their male counterparts.
In this episode, I discuss how women with PD experience different interactions between women and healthcare professionals and different symptoms compared with men. We also discuss why women are under-represented in research about PD and how this impacts our understanding of what women experience with PD. Finally, we talk about how women experience more social challenges than men overall which complicates their ability to care for themselves.
I hope this episode highlights some of the challenges that women with PD face and offers some space to open up discussions about how we can better support women to ensure they have the best quality care and lives possible.
This week on the podcast I talk about pain.
Pain is an under-recognized and under-reported symptom of Parkinson's Disease. Because of this, it is inadequately treated despite being one of the most bothersome symptoms of PD at any stage of the disease. In this episode, we talk about the different types of pain that are experienced by people with Parkinson's, and some of the ways that people can help to manage their pain.
Orthostatic Hypotension affects up to 1/3 of all people with Parkinson's and can have devastating consequences. In this episode, Anne discusses what Orthostatic Hypotension is, how it is diagnosed, and strategies for how to manage it in your daily life.
In this episode of the Parkinson's Vitality Project Podcast the tables are turned! Dr. Caroline Morris is interviewing me about my newest program helping people to improve their life through small individualized changes that will heave impacts on their overall health through coaching. We talk about what coaching is and how it can help people by focusing on the individual and allowing for open safe space to figure out how to achieve optimal wellness.
If you are interested in finding out more about my coaching programs or are interested in scheduling a free discovery call to see if coaching is right for you, you can visit my website at: www.envisionptw.com
You can also follow me at:
Instagram: https://www.instagram.com/envisionptwell/?hl=en
Facebook: https://www.facebook.com/envisionptwell/?show_switched_toast=1&show_switched_tooltip=0&show_podcast_settings=0
I am back from my hiatus and excited to interview Dr. Caroline Morris, physical therapist and health coach who specializes in working with people who have cardiac conditions. We discuss some of the common cardiac issues that people with Parkinson's have and what people can do to help manage these lesser talked about issues in PD.
If you want to know more about Dr. Caroline, you can find her at: https://carolinemorris.com/
You can follow Dr. Caroline on:
LinkedIn: https://www.linkedin.com/in/caroline-morris-pt-dpt-b9300769/
Twitter: https://twitter.com/carolinehmorr
YouTube: https://www.youtube.com/channel/UCVDxqM9x7om1Ihc6vHpO4yw/about
On this episode I talk with Melody McLaughlin, the Senior Community Program Manager from the New England Chapter of the Parkinson's Foundation. We talk about the resources on the Foundation's website as well as the programs that the Foundation runs to help educate and support people with Parkinson's as well as friends and family members who want to understand more about the disease and learn about how they can support their loved one.
If you want more information about the resources we discuss in this episode, you can visit:
Website: Parkinson.org
Parkinson's Foundation Helpline
1.800.4PD.INFO (1-800-473-4636)
This week is the 2nd episode on the podcast where I speak with Stephanie Smith Goodman who is the creator of the Parkinson's Art of Expression (PARTE) program. In this episode we talk about how she became interested in working with people with PD and how she came to be involved at the Parkinson's Exercise and Wellness Center in Overland Park, KS. Stephanie describes some of the activities that are included in a PARTE classes and she even has me participate in one of the activities.
Stephanie is working on increasing access to PARTE for people around the country through training more coaches to lead these programs. Her next training is April 10-11, 2021 at GroupHab Physical Therapy and Wellness in Simpsonville, SC. If you are interested in finding more about this training date you can contact Dr. Patrice Hazan at info@therehabfitness.com or by calling (864) 525-2654.
For more information about the Parkinson's Exercise and Wellness center you can visit their website: https://www.thepewc.org/ , email info@thepewc.org, or call (913) 276-4665.
This week is the 1st of 2 episodes on the podcast where I speak with Stephanie Smith Goodman who is the creator of the Parkinson's Art of Expression (PARTE) program. In this episode we talk about how she became interested in working with people with PD and how she came to be involved at the Parkinson's Exercise and Wellness Center in Overland Park, KS. Stephanie describes some of the activities that are included in a PARTE classes and she even has me participate in one of the activities.
Stephanie is working on increasing access to PARTE for people around the country through training more coaches to lead these programs. Her next training is April 10-11, 2021 at GroupHab Physical Therapy and Wellness in Simpsonville, SC. If you are interested in finding more about this training date you can contact Dr. Patrice Hazan at info@therehabfitness.com or by calling (864) 525-2654.
For more information about the Parkinson's Exercise and Wellness center you can visit their website: https://www.thepewc.org/ , email info@thepewc.org, or call (913) 276-4665.
This week on the podcast I am speaking with Amanda Bouchard, a Certified Therapeutic Recreational Specalist with Northeast Passage. Northeast Passage is an organization in New Hampshire that organizes adaptive recreational and sports programs for people with disabling conditions. Their mission is to empower people living with disabling conditions, both visible and invisible, to define, pursue and achieve whole life health, community engagement and fulfillment through the purposeful use of sports and recreation; to develop and promote best practices in the fields of Therapeutic Recreation and Adaptive Sports.
Amanda and I speak about how Northeast Passage began and some of the programs they offer. We also talk about some of the adaptations that can help people who have mobility struggles to participate in the activities they love, including cycling, golf and archery.
If you want to find out more about the programs provided by Northeast Passage, you can find them at https://www.nepassage.org/ or call 603.862.0070
If you are not in the New Hampshire area and would like to find an adaptive sports and/or recreation program near you, you can check out Move United at https://www.moveunitedsport.org/chapters/location-map/
This week on the Parkinson's Vitality Project Podcast I am speaking with Brett MIller, owner and head coach at 110 Fitness in Rockland, MA. Brett has been a PT for 26 years in a variety of settings, and was an adaptive sports coach for New England Disabled Sports at Loon Mountain for 17 years. 110 Fitness is an inclusive wellness center for individuals afflicted with disease and/or developmental or physical disability. In addition to the physical gym in Rockland, the gym has now expanded to offer an app which houses all of the fitness programs for subscribers who are not from the eastern Massachusetts area.
You can find out more about 110 Fitness and the 110 Fitness app at: https://110fitness.org/
You can contact Brett with questions or to make a donation at:
Phone: 781-616-3313
Email: bmiller@110fitness.org
This week on the podcast I am going over some of the questions I get commonly asked and where I find resources for people with Parkinson's. I talk about what is available from the Parkinson's Foundation to support people with PD as well as how to find Centers of Excellence, support groups and exercise classes in your community.
To reach the Parkinson Foundation: www.parkinson.org
To reach the American Parkinson Disease Association: www.apdaparkinson.org
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/envisionptwell/
Did you set a New Years Resolution for yourself this year? Have you kept it up? In this episode we talk about why many times people don't stick with new years resolutions and goals and what we can do to help ourselves to achieve the goals we set for ourselves. I talk about how having a vision of what you ultimately want can help to keep you motivated to continue to work towards your goals, and some of the ways you can break large goals up into smaller more achievable ones so that you can celebrate success along the way.
Hopefully this can help make 2021 the best year for you to work towards your goals!
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/envisionptwell/
This is the 3rd and final episode of the Oral Health Mini Series. In this series, we have looked at the importance of oral health and how to maintain it. I will be speaking with a dentist, speech and language pathologist and an occupational therapist about why oral health is important for overall health and what you can do to help keep your mouth, teeth and gums healthy.
On this episode I am once again speaking with Cassie Lorie, Occupational Therapist from Brain Body Better. We discuss some of the difficulties that people with Parkinson's and other mobility problems can have when performing their oral care. We also discuss some exercises that people can do to help maintain their hand and arm function to make it easier to do good oral care as well as adaptive equipment that people can use to help them maintain good oral health.
I hope you enjoyed this mini series!
Some of the resources we talk about during this episode include:
A downloadable resource of the recommendations Cassie outlined: https://www.canva.com/design/DAENQ5appE0/B6Y1UfpElfhWTAekVrChSg/view?utm_content=DAENQ5appE0&utm_campaign=designshare&utm_medium=link&utm_source=homepage_design_menu
Invigorate Physical Therapy and Wellness Video of "7 Helpful Hand Exercises for People with Parkinson's": https://www.youtube.com/watch?v=Ez2GeaMa4c8
You can find Cassie at:
https://www.engagebrainbodybetter.com/
https://www.brainbodybetter.com/
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/
https://www.instagram.com/envisionptwell/
Today we are continuing the 3 week Oral Health Mini Series. We continue to look at importance of oral health and how to maintain it. During the series, I will be speaking with a dentist, speech and language pathologist and an occupational therapist about why oral health is important for overall health and what you can do to help keep your mouth, teeth and gums healthy.
On the 2nd episode of the Oral Health Mini Series I am once again speaking with Kaila McCarthy from Brain Body Better. Kaila is passionate about helping her clients maintain good oral health. We talk about why taking care of your mouth and reducing the bacteria in that area is be so important. In addition we discuss the risk factors for developing an aspiration pneumonia and areas you can control to reduce those risk factors.
You can find Kaila at Engage Brain Body Better and Brain Body better at:
https://www.engagebrainbodybetter.com/
https://www.brainbodybetter.com/
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/
https://www.instagram.com/envisionptwell/
This week we are beginning a 3 week mini-series looking at the importance of oral health and how to maintain it. I will be speaking with a dentist, speech and language pathologist and an occupational therapist about why oral health is important for overall health and what you can do to help keep your mouth, teeth and gums healthy.
This week I am speaking with Dr Gregory Wu, a dentist at Emerson Dental in Westford, Massachusetts. We talk about why dental health is important for overall health, the reasons that we need to brush and floss, and the importance of being seen by the dentist regularly in order to ensure that we are managing bacteria in the mouth to prevent tooth decay. We also talk about why a dentist may recommend more frequent tooth cleanings for prevention.
You can find out more about Dr. Wu's practice at: https://www.emerson-dental.com/
or on Facebook at: https://www.facebook.com/emersondental
As always, if you want to contact Anne, you can reach her at: anne.envision@gmail.com
Or you can find me on my social media platforms: Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/ https://www.instagram.com/envisionptwell/
One of the most frustrating things for people with Parkinson's is fatigue, or feeling exhausted and not being able to get through one's day. In this week's podcast, Anne talks about some of the tips she gives people who are having trouble getting it all done because they get tired during the day.
If you want to contact Anne, you can reach her at: anne.envision@gmail.com
Or you can find me on my social media platforms: Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/ https://www.instagram.com/envisionptwell/
This week Anne talks with Cassie Lorie, an occupational therapist who is certified in LSVT LOUD and Low Vision therapy through the American Occupational Therapy Association. In addition to working to adults manage chronic health conditions (like Parkinson's) using a holistic, community based approach, Cassie is one of the founders of Engage Brain Body Better and Brain Body Better where she does telehealth wellness and therapy to help people with PD live their best lives. In this episode we talk about what some of the ways that occupational therapy can help people manage the problems with fine motor control that people with Parkinson's can develop. We also talk about the handwriting group that Cassie is running through her business Engage Brain Body Better.
You can find Cassie at:
https://www.engagebrainbodybetter.com/
https://www.brainbodybetter.com/
If you want to contact Anne, you can reach her at: anne.envision@gmail.com
Or you can find me on my social media platforms: Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/ https://www.instagram.com/envisionptwell/
This week Anne talks with Cassie Lorie, an occupational therapist who is certified in LSVT LOUD and Low Vision therapy through the American Occupational Therapy Association. In addition to working to adults manage chronic health conditions (like Parkinson's) using a holistic, community based approach, Cassie is one of the founders of Engage Brain Body Better and Brain Body Better where she does telehealth wellness and therapy to help people with PD live their best lives. In this episode we talk about what occupational therapy is, why people may seek out occupational therapy and some of the ways that an occupational therapist can help with low vision.
You can find Cassie at:
https://www.engagebrainbodybetter.com/
https://www.brainbodybetter.com/
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/
https://www.instagram.com/envisionptwell/
In this episode of the podcast, Anne talks with Kaila McCarthy. Kaila is a speech therapist who is certified in LSVT LOUD, LSVT Loud for Life and SpeakOut! who works with people with PD via telehealth wellness and therapy appointments with Engage Brain Body Better and Brain Body better.
In the episode we talk about what speech therapy is and the role plays in helping people with PD. We go over the more common conditions that speech therapy treats for people with PD, including voice training, cognitive training and swallowing. In addition, we talk about things to look out for when you have PD in order to maintain optimal health.
You can find Kaila at Engage Brain Body Better and Brain Body better at:
https://www.engagebrainbodybetter.com/
https://www.brainbodybetter.com/
If you want to contact Anne, you can reach her at:
anne.envision@gmail.com
Or you can find me on my social media platforms:
Facebook : https://www.facebook.com/anne.gouldruete
Instagram: https://www.instagram.com/the_pd_pt/
https://www.instagram.com/envisionptwell/