In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
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In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
Episode 7 - A lively discussion on receiving a diagnosis for a muscle wasting condition and available support
The Muscular Dystrophy UK: Muscles Matter Podcast
39 minutes
1 month ago
Episode 7 - A lively discussion on receiving a diagnosis for a muscle wasting condition and available support
Our latest episode of Muscles Matter focusses on the point of receiving a diagnosis for a muscle wasting condition and the support made available from that point onwards. Our guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, share their experiences and engage in a lively discussion with Kerry Spinks our podcast host whose twin sons live with FSHD. Drawing on their own lived experiences, all three discuss how diagnosis and support currently l...
The Muscular Dystrophy UK: Muscles Matter Podcast
In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...