In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
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In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
Episode 4 - The impact of being a carer and receiving care
The Muscular Dystrophy UK: Muscles Matter Podcast
29 minutes
4 months ago
Episode 4 - The impact of being a carer and receiving care
In our latest Muscles Matter episode we explore the emotional impact of care, how it affects relationships, setting healthy boundaries, and when it might be time to bring in paid carers. Kerry, mum to twins Oscar and Seb who both live with FSHD, and Lauren who lives with SMA, share their experiences of care from both sides: being a carer and being cared for. They are joined by our host Becca, who lives with SMA.
The Muscular Dystrophy UK: Muscles Matter Podcast
In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
