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The Medical Maze: Decoding Misunderstood Diseases
Don-Ellen Ray
18 episodes
4 days ago
Join host Don-Ellen Ray on a thrilling journey through "The Medical Maze: Decoding Misunderstood Diseases." Explore rare and misdiagnosed illnesses, uncovering hidden truths and empowering knowledge. From personal stories to expert insights, this podcast sheds light on the complexities of healthcare. Embark on an adventure of understanding, as we navigate the maze together. Get ready to unravel the mysteries and make a difference in the world of misunderstood diseases.
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Alternative Health
Health & Fitness
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All content for The Medical Maze: Decoding Misunderstood Diseases is the property of Don-Ellen Ray and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Join host Don-Ellen Ray on a thrilling journey through "The Medical Maze: Decoding Misunderstood Diseases." Explore rare and misdiagnosed illnesses, uncovering hidden truths and empowering knowledge. From personal stories to expert insights, this podcast sheds light on the complexities of healthcare. Embark on an adventure of understanding, as we navigate the maze together. Get ready to unravel the mysteries and make a difference in the world of misunderstood diseases.
Show more...
Alternative Health
Health & Fitness
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Living with an Undiagnosed Auto-Inflammatory Disease
The Medical Maze: Decoding Misunderstood Diseases
46 minutes 13 seconds
2 years ago
Living with an Undiagnosed Auto-Inflammatory Disease

Alison shares her decades-long struggle living with an undiagnosed auto-inflammatory disease and a myriad of other chronic health conditions. Diagnosed with Crohn's disease at age 7, she began suffering from extreme gastrointestinal symptoms and complications that have continued into adulthood.

However, Alison also experiences many perplexing symptoms unrelated to her Crohn's, including severe fatigue, migrating arthritic pain, Raynaud's phenomenon, and random inflammation flare-ups on her body triggered by stress. Despite endless tests and specialist referrals, the source of these strange symptoms continues to evade diagnosis.In this emotional episode, Alison opens up about her childhood blockage from Crohn's medications, the isolation of dealing with chronic illness as a kid, being dismissed by doctors, and the frustration of unexplained symptoms. She also shares how her health impacts dating, work, and everyday life.

After decades without answers, Alison has a new referral to the National Institutes of Health, which offers hope for finally discovering what auto-inflammatory condition may be behind her myriad of symptoms.

Hashtags:

#AutoInflammatoryDisease #Undiagnosed #ChronicIllness #CrohnsDisease #Arthritis #Disability #RareDisease #InvisibleIllness #Spoonie #YoungPeopleWithLupus #RheumatoidArthritis #Health #Wellness #PatientStory #MedicalJourney #Advocate

The Medical Maze: Decoding Misunderstood Diseases
Join host Don-Ellen Ray on a thrilling journey through "The Medical Maze: Decoding Misunderstood Diseases." Explore rare and misdiagnosed illnesses, uncovering hidden truths and empowering knowledge. From personal stories to expert insights, this podcast sheds light on the complexities of healthcare. Embark on an adventure of understanding, as we navigate the maze together. Get ready to unravel the mysteries and make a difference in the world of misunderstood diseases.