In this episode of The Lighthouse Family Podcast, we have the privilege of hearing from Dustin and Tatiana Rose. Together, they have a beautiful son, Max (4yrs old). Max was 3 1/2 years old when their world was forever changed.
Max's initial medical concern, suspected scoliosis, led to an MRI revealing a Ganglioneuroblastoma mass near his spine, a diagnosis they never saw coming. Their path forward was uncertain, as they sought opinions from multiple oncologists, each offering different treatment options for this rare tumor's challenging location.
Their story takes a turn as they find a surgeon in New York who holds the confidence to remove the tumor without the need for chemotherapy, leading them on a journey made possible by the incredible organization Flight of Hope. The 10-hour surgery, while successful, marked the beginning of a new set of challenges. Max's development of scoliosis and the necessity for a full upper-body cast add to the complexities they face as he copes with limited mobility and non-verbal communication.
Throughout their story, a common theme emerges - the journey through and beyond childhood cancer is a rollercoaster of emotions, and understanding one another's feelings is paramount. The aftermath of being "cancer-free" can prove just as challenging as treatment, emphasizing the significance of the unwavering support of family and friends.
Join us as we dive deep into this extraordinary story, and witness the incredible strength and resilience of Dustin, Tatiana, and Max on The Lighthouse Family Podcast.
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