So let me introduce am Jake and I have Functional Neurological Disorders or FND for short for over 10 years now I live in Sheffield. I Want to use this podcast to talk to other people with FND, Medical people in the area of Functional Neurological Disorders. To try and get more awareness on FND and to show people that you are not alone with it but to create a support system for other people suffering from FND.
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So let me introduce am Jake and I have Functional Neurological Disorders or FND for short for over 10 years now I live in Sheffield. I Want to use this podcast to talk to other people with FND, Medical people in the area of Functional Neurological Disorders. To try and get more awareness on FND and to show people that you are not alone with it but to create a support system for other people suffering from FND.
Struggling with Misinterpretations and Miscommunications 103
The It’s Me It’s Me It’s FND Podcast
7 minutes 27 seconds
1 year ago
Struggling with Misinterpretations and Miscommunications 103
Welcome back to another episode of "It's Me, It's Me, It's F&D." After a brief hiatus, our host delves deep into his frustration and struggles concerning the misinterpretations and inaccuracies in his discharge letter. Unhappy with the contradiction between his reported health conditions and the consultant's inaccurate summary of his situation, he and his wife are taking steps to address this dire matter. Delving into the depths of medical jargon and misconceptions, our host grapples with the inappropriate use of outdated terminology and expresses his perturbation over the misrepresentation of his seizure frequency. His concern heightens when he reads mention of his newborn child, wrongly used to explain his chronic sleep deprivation, a problem that prevailed long before. Furthermore, he voices his irritation over implications that he failed to maintain the benefits of his psychotherapy sessions, despite the lack of ongoing support and assistance. Our host feels that the discharge letter is ill-considerately written, causing him utter anguish and frustration. The episode offers a closer look at medical negligence, bureaucracy, and the upheavals it can cause in a patient's life. Calling out the system, he resonates with countless others facing the same challenges while fighting their health battles. Simultaneously, he shares his hardships of dealing with Medquip, a company that has caused him more stress than comfort. Consequently, his seizures worsen, adding another layer to his ongoing health issues. Bridled with the feeling of failure and rejection, he anchors himself with a positive outlook on life and a reminder for his listeners to rest if needed. Tune in to this episode to delve into the complex life of F&D told through our host's heartfelt dialogue.
The It’s Me It’s Me It’s FND Podcast
So let me introduce am Jake and I have Functional Neurological Disorders or FND for short for over 10 years now I live in Sheffield. I Want to use this podcast to talk to other people with FND, Medical people in the area of Functional Neurological Disorders. To try and get more awareness on FND and to show people that you are not alone with it but to create a support system for other people suffering from FND.