Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
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Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
Episode 8: Celebrating Rare - The GRIN2B Podcast Episode 7 - Looking Forward to 2022 with Liz Marfia-Ash
The GRIN2B Foundation's Podcast
57 minutes
3 years ago
Episode 8: Celebrating Rare - The GRIN2B Podcast Episode 7 - Looking Forward to 2022 with Liz Marfia-Ash
Celebrating Rare - The GRIN2B Podcast closes out 2021 by welcoming GRIN2B Foundation President and founder Liz Marfia-Ash. Liz reflects on the year that was while also previewing three exciting initiatives GRIN2B Foundation is taking on in 2022, including a potential clinical trial for patients with gain of function GRIN2B variants, the opening of the first GRI Center of Excellence in Denver, Colorado and previewing our first in-person family weekend since 2018.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
The GRIN2B Foundation's Podcast
Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
