Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
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Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
In its inaugural episode, Celebrating Rare discusses the goals of the GRIN2B podcast and defines the rare genetic disorder that is GRIN2B. Host Phil Ash then discusses his daughter, Lucy and his family's journey to receiving her diagnosis. Finally, Phil discusses several treatment options for persons with GRIN2B.
PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
The GRIN2B Foundation's Podcast
Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.
