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The Galactosemia Podcast
Ryan and Jill
23 episodes
1 week ago
The Galactosemia Podcast is a resource for understanding and navigating life with galactosemia. Whether you’re a new parent grappling with a recent diagnosis or a member of the community seeking updates, this podcast has you covered. Each episode dives deep into the science, treatments, and real-life experiences of families and experts dealing with this rare genetic condition. Join us as we interview doctors, researchers, and families to share insights, practical advice, and hope for the future.
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Medicine
Health & Fitness
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All content for The Galactosemia Podcast is the property of Ryan and Jill and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Galactosemia Podcast is a resource for understanding and navigating life with galactosemia. Whether you’re a new parent grappling with a recent diagnosis or a member of the community seeking updates, this podcast has you covered. Each episode dives deep into the science, treatments, and real-life experiences of families and experts dealing with this rare genetic condition. Join us as we interview doctors, researchers, and families to share insights, practical advice, and hope for the future.
Show more...
Medicine
Health & Fitness
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IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer
The Galactosemia Podcast
1 hour 18 minutes 26 seconds
9 months ago
IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer

thegalactosemiapodcast.com - support the show; ad-free and early access episodes

Links & Resources Mentioned:

Individuals with Disabilities Education Improvement Act (IDEA)

Every Student Succeeds Act

Section 504 of the Rehabilitation Act

In this episode, we sit down with Dr. Karolyn Mauer, an expert in special education, to break down the educational landscape for children with galactosemia. Dr. Mauer explains everything from early interventions to transition services, helping parents understand their rights and the supports available through the public education system. This conversation demystifies special education terminology and provides practical guidance for navigating school-based services.

Key Topics Discussed:

  • Early intervention services (birth to age 3) and how to access them

  • The transition from IFSP to IEP at age 3

  • The 13 disability classifications under IDEA

  • Different classroom settings and the concept of least restrictive environment

  • The difference between IEPs and 504 plans

  • Executive functioning skills and supports

  • High school completion options and transition services

  • Parent and student rights in the special education process

  • How to be an effective advocate for your child

Guest Bio: Dr. Karolyn Mauer is an assistant professor at Minnesota State University, where she trains special education teachers. She has extensive experience as a special education teacher, director of special education, and instructional coach. Dr. Mauer has worked with students from kindergarten through high school and holds a Ph.D. in special education from UCLA/Cal State LA's joint doctoral program.

00:00 - Introduction & Episode Overview 

04:00 - Dr. Maurer's Background & Experience 

11:00 - Understanding Early Intervention 

15:00 - How to Request Services 

21:00 - Breaking Down IEPs 

25:00 - Parent Rights & Involvement 

30:00 - The 13 Disability Classifications 

34:00 - Classroom Settings & Placement Options 

38:00 - Understanding Self-Contained Classrooms 

41:00 - Understanding 504 Plans 

45:00 - Types of Accommodations 

48:00 - Executive Functioning Explained 

52:00 - High School & Beyond 

56:00 - Alternative Assessment Options 

59:00 - Educational Advocates 

1:01:00 - Transition Services (18-21) 

1:04:00 - Recap & Key Takeaways


The Galactosemia Podcast
The Galactosemia Podcast is a resource for understanding and navigating life with galactosemia. Whether you’re a new parent grappling with a recent diagnosis or a member of the community seeking updates, this podcast has you covered. Each episode dives deep into the science, treatments, and real-life experiences of families and experts dealing with this rare genetic condition. Join us as we interview doctors, researchers, and families to share insights, practical advice, and hope for the future.