Episode 2: Emily- Talking about Rett syndrome

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🎙️The Diaries of a SEND Parent🎙️

Alexandra Kingsnorth @sendmummaofthree

19 episodes

6 days ago

A heartfelt and honest podcast that gives parents and carers raising children with special educational needs and disabilities a safe space to share their journeys. From the highs of breakthrough moments to the challenges of navigating a complex system, each episode dives into real-life experiences, offering support, solidarity, and hope. Whether you’re a SEND parent yourself or someone who wants to understand more, this podcast is here to remind you—you are not alone.

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Episode 2: Emily- Talking about Rett syndrome

🎙️The Diaries of a SEND Parent🎙️

46 minutes 28 seconds

7 months ago

Episode 2: Emily- Talking about Rett syndrome

Welcome to Episode 2 of The diaries of a SEND Parent.

I am joined by the incredible Emily who shares her unique journey with daughter Lucy who was diagnosed with Rett Syndrome. We discuss everything from daily struggles, diagnosis, being put on the autism pathway and resources which Lucy desperately needs. Raising awareness for rare genetic disorders is something I’m really passionate about and would be incredibly grateful if you could share this episode once you have listened.

Also want to shout out the amazing Rett charity’s-Rett UK and Reverse Rett who do the most incredible work in supporting children and adults who have been diagnosed with the condition.