Fefe Deskins is a resilient concussion survivor who has navigated the challenges of post-concussion syndrome (PCS) since her initial injury in 2012. After experiencing multiple concussions, Fefe has learned to adapt, advocate for herself, and find strength through faith and self-awareness. In this interview, she opens up about her journey with post-concussion syndrome, from memory struggles and emotional overwhelm to finding hope through faith, self-compassion, and therapy. She discusses the importance of communication and acceptance. Whether you're a concussion survivor or supporting someone who is, Fefe’s story offers invaluable insights on resilience, patience, and the power of staying present.
Resources & Advice Mentioned by Fefe:Contact & Additional Resources:
Cognitive Behavioral Therapy (CBT):
Fefe credits CBT with helping her process emotions and reframe negative thoughts. She worked with a therapist who used simple, visual tools (like emojis) to label and manage her feelings.
Alternative Treatment: Nasal Specific Technique
Dr. Buhler, a chiropractor from Buhler Athletic Injuries & Human Performance Clinic performed a specialized treatment involving inflating a balloon in the nasal passage to release skull plate tension. https://www.youtube.com/watch?v=pl8GqZulWok
Note: This is a specialized therapy—consult a specialist to see if it’s right for you.
Self-Care Strategies:
Rest & Naps: Prioritizing short breaks or naps to recharge her brain.
Nature & Solo Activities: Hiking, photography, and pottery helped her reset.
Dishes as Therapy: The rhythmic, sensory activity calmed her nervous system.
Faith & Community:
Fefe emphasizes how her faith in God and involvement with The Church of Jesus Christ of Latter-day Saints provided stability and hope. She recommends leaning into spiritual practices or personal beliefs as a source of strength.
Communication Tips:
Be honest with loved ones about your energy levels and needs.
Use humor to diffuse frustration (e.g., laughing off forgotten plans).
Key Mindset Shifts:
Let go of rigid expectations for the future. Focus on small, daily wins.
Accept that recovery isn’t linear—bad days will pass.
Contact & Additional Resources:
Fefe’s Advice: "Don’t fight the wave. Let emotions come, then let them go. Advocate for yourself—no one knows your brain like you do."
For Concussion Coaching: Visit https://theconcussioncoach.com/contact/ to sign up for a free consultation with Bethany Lewis.
If you would like to sign up for a free concussion coaching consultation with me to learn how you can understand and manage your symptoms, speed up your recovery, and get your life back following a concussion, go to my website: www.theconcussioncoach.com, or click on this link: https://theconcussioncoach.com/contact