Welcome to The Chronic Spoonful–the ultimate chronic illness podcast and blog! We invite you to join us for talks about living with chronic illness including the ups, the downs, and all the in-betweens.
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Welcome to The Chronic Spoonful–the ultimate chronic illness podcast and blog! We invite you to join us for talks about living with chronic illness including the ups, the downs, and all the in-betweens.
The Patients' Bill of Rights: A Must Know for Spoonies!
The Chronic Spoonful
1 hour 19 minutes
4 years ago
The Patients' Bill of Rights: A Must Know for Spoonies!
It's amazing to us how many people don't know that they have certain rights when they walk into the door of a medical facility. We shouldn't be shocked. It's not like anyone went out of their way to make sure you or any of the rest of us knew we had them. They didn't. We think there may have been some blips on the news about the Patients' Bill of Rights, but that's about it.
However, these rights are essential for Spoonies to know. We can't tell you how many times we're in our groups online and someone tells us about a disrespectful doctor or how they received a treatment that was contraindicated with something they were already on. They had no idea they could refuse treatment, or that they had a right to respect in a medical facility.
But you do have rights. You have a lot of them, and these doctors, nurses, other care staff and the administrators need to respect them. IT IS THE LAW.
Whew, we get really heated when we talk about this, because it gets under our craw when we feel our fellow Spoonies are being mistreated. The Patients' Bill of Rights was designed to protect you and ensure you would get proper and equal treatment. So on this week's episode we go over each aspect of the law and what you have a right to expect. We lay it out in detail.
And let us tell you, it's no short episode, but it's an essential one. You might need to take a break, take some notes, whatever you need to do. But don't miss this episode.
And like always, share your stories and advice on our Facebook page. We'd love to hear your insight!
We also encourage you to check out our My Chronic Spoonful Life Planner where you can track everything going on with your chronic illness. It comes in a downloadable form that you can print, a digital form you can use in apps like GoodNotes and Notability, or a quarterly hard copy.
Have a great week, everyone!
The Chronic Spoonful
Welcome to The Chronic Spoonful–the ultimate chronic illness podcast and blog! We invite you to join us for talks about living with chronic illness including the ups, the downs, and all the in-betweens.